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The German National Program on Psoriasis Health Care 2005-2015: results and experiences.

Augustin M, Eissing L, Langenbruch A, Enk A, Luger T, Maaßen D, Mrowietz U, Reich K, Reusch M, Strömer K, Thaçi D, von Kiedrowski R, Radtke MA - Arch. Dermatol. Res. (2016)

Bottom Line: Patient burden, economic impact and barriers to care were systematically analyzed.In order to optimize routine care, a S3 guideline, a set of outcomes measures and treatment goals, were developed.Currently 28 regional networks including more than 800 dermatologists are active.

View Article: PubMed Central - PubMed

Affiliation: Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Germany. m.augustin@uke.de.

ABSTRACT
In 2005, the first national psoriasis survey in Germany revealed large deficits in health care particularly in patients with moderate to severe disease. The consecutive goal was to improve health care for psoriasis countrywide. For this, a large-scale national program was initiated starting with a comprehensive analysis of structures and processes of care for psoriasis. Patient burden, economic impact and barriers to care were systematically analyzed. In order to optimize routine care, a S3 guideline, a set of outcomes measures and treatment goals, were developed. Implementation was enforced by the German Psoriasis Networks (PsoNet) connecting the most dedicated dermatologists. The annual National Conference on Health Care in Psoriasis established in 2009 consented National Health Care Goals in Psoriasis 2010-2015 and defined a set of quality indicators, which are monitored on a regular basis. Currently 28 regional networks including more than 800 dermatologists are active. Between 2005 and 2014 7 out of 8 quality indicators have markedly improved, and regional disparities were resolved. e.g., mean PASI (Psoriasis Area Severity Index) dropped from 11.4 to 8.1 and DLQI (Dermatology Life Quality Index) from 8.6 to 5.9. A decade of experience indicates that a coordinated nationwide psoriasis program based on goal orientation can contribute to better quality of care and optimized outcomes.

No MeSH data available.


Related in: MedlinePlus

Patient goals and needs from treatment in psoriasis
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Fig2: Patient goals and needs from treatment in psoriasis

Mentions: In order to address more specific support for patients, therapeutic needs were to be identified. Using the Patient Benefit Index (PBI) [15], a broad spectrum of patient-relevant therapeutic needs and potential benefits from treatments were identified (Fig. 2) [21]. Psoriasis patients named 21 out of 25 standardized benefit items to at least 50 %, including clearance of skin lesions, improvement of itching and burning of skin, less time needed for treatment, avoidance of treatment side effects and reduced physician and clinic consultations. Such a broad spectrum of patient needs required specific consideration in the translation of guidelines into clinical practice. In particular, the choice of therapy and the definition of treatment goals should take individual patient preferences into consideration.Fig. 2


The German National Program on Psoriasis Health Care 2005-2015: results and experiences.

Augustin M, Eissing L, Langenbruch A, Enk A, Luger T, Maaßen D, Mrowietz U, Reich K, Reusch M, Strömer K, Thaçi D, von Kiedrowski R, Radtke MA - Arch. Dermatol. Res. (2016)

Patient goals and needs from treatment in psoriasis
© Copyright Policy - OpenAccess
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC4940437&req=5

Fig2: Patient goals and needs from treatment in psoriasis
Mentions: In order to address more specific support for patients, therapeutic needs were to be identified. Using the Patient Benefit Index (PBI) [15], a broad spectrum of patient-relevant therapeutic needs and potential benefits from treatments were identified (Fig. 2) [21]. Psoriasis patients named 21 out of 25 standardized benefit items to at least 50 %, including clearance of skin lesions, improvement of itching and burning of skin, less time needed for treatment, avoidance of treatment side effects and reduced physician and clinic consultations. Such a broad spectrum of patient needs required specific consideration in the translation of guidelines into clinical practice. In particular, the choice of therapy and the definition of treatment goals should take individual patient preferences into consideration.Fig. 2

Bottom Line: Patient burden, economic impact and barriers to care were systematically analyzed.In order to optimize routine care, a S3 guideline, a set of outcomes measures and treatment goals, were developed.Currently 28 regional networks including more than 800 dermatologists are active.

View Article: PubMed Central - PubMed

Affiliation: Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Germany. m.augustin@uke.de.

ABSTRACT
In 2005, the first national psoriasis survey in Germany revealed large deficits in health care particularly in patients with moderate to severe disease. The consecutive goal was to improve health care for psoriasis countrywide. For this, a large-scale national program was initiated starting with a comprehensive analysis of structures and processes of care for psoriasis. Patient burden, economic impact and barriers to care were systematically analyzed. In order to optimize routine care, a S3 guideline, a set of outcomes measures and treatment goals, were developed. Implementation was enforced by the German Psoriasis Networks (PsoNet) connecting the most dedicated dermatologists. The annual National Conference on Health Care in Psoriasis established in 2009 consented National Health Care Goals in Psoriasis 2010-2015 and defined a set of quality indicators, which are monitored on a regular basis. Currently 28 regional networks including more than 800 dermatologists are active. Between 2005 and 2014 7 out of 8 quality indicators have markedly improved, and regional disparities were resolved. e.g., mean PASI (Psoriasis Area Severity Index) dropped from 11.4 to 8.1 and DLQI (Dermatology Life Quality Index) from 8.6 to 5.9. A decade of experience indicates that a coordinated nationwide psoriasis program based on goal orientation can contribute to better quality of care and optimized outcomes.

No MeSH data available.


Related in: MedlinePlus