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C3-PRO: Connecting ResearchKit to the Health System Using i2b2 and FHIR.

Pfiffner PB, Pinyol I, Natter MD, Mandl KD - PLoS ONE (2016)

Bottom Line: However, being research backend agnostic, ResearchKit does not provide data transmission facilities, leaving research apps disconnected from the health system.This open source toolchain connects, in a standards-compliant fashion, any ResearchKit app to the widely-used clinical research infrastructure Informatics for Integrating Biology and the Bedside (i2b2).C3-PRO leverages the emerging health data standard Fast Healthcare Interoperability Resources (FHIR).

View Article: PubMed Central - PubMed

Affiliation: Computational Health Informatics Program, Boston Children's Hospital, Boston, Massachusetts, United States of America.

ABSTRACT
A renewed interest by consumer information technology giants in the healthcare domain is focused on transforming smartphones into personal health data storage devices. With the introduction of the open source ResearchKit, Apple provides a framework for researchers to inform and consent research subjects, and to readily collect personal health data and patient reported outcomes (PRO) from distributed populations. However, being research backend agnostic, ResearchKit does not provide data transmission facilities, leaving research apps disconnected from the health system. Personal health data and PROs are of the most value when presented in context along with health system data. Our aim was to build a toolchain that allows easy and secure integration of personal health and PRO data into an open source platform widely adopted across 140 academic medical centers. We present C3-PRO: the Consent, Contact, and Community framework for Patient Reported Outcomes. This open source toolchain connects, in a standards-compliant fashion, any ResearchKit app to the widely-used clinical research infrastructure Informatics for Integrating Biology and the Bedside (i2b2). C3-PRO leverages the emerging health data standard Fast Healthcare Interoperability Resources (FHIR).

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Related in: MedlinePlus

C3-PRO data flow.Data flow from data capture on the phone through the C3-PRO receiver, consumer and i2b2 cell into the i2b2 database.
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pone.0152722.g003: C3-PRO data flow.Data flow from data capture on the phone through the C3-PRO receiver, consumer and i2b2 cell into the i2b2 database.

Mentions: As a second step the actual "Authorization" header is inspected for a valid OAuth2 access token. This token is handed out to the app after a "client credentials" OAuth2 flow, using client key and secret handed out to the app after registration described above (Fig 3).


C3-PRO: Connecting ResearchKit to the Health System Using i2b2 and FHIR.

Pfiffner PB, Pinyol I, Natter MD, Mandl KD - PLoS ONE (2016)

C3-PRO data flow.Data flow from data capture on the phone through the C3-PRO receiver, consumer and i2b2 cell into the i2b2 database.
© Copyright Policy
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC4816293&req=5

pone.0152722.g003: C3-PRO data flow.Data flow from data capture on the phone through the C3-PRO receiver, consumer and i2b2 cell into the i2b2 database.
Mentions: As a second step the actual "Authorization" header is inspected for a valid OAuth2 access token. This token is handed out to the app after a "client credentials" OAuth2 flow, using client key and secret handed out to the app after registration described above (Fig 3).

Bottom Line: However, being research backend agnostic, ResearchKit does not provide data transmission facilities, leaving research apps disconnected from the health system.This open source toolchain connects, in a standards-compliant fashion, any ResearchKit app to the widely-used clinical research infrastructure Informatics for Integrating Biology and the Bedside (i2b2).C3-PRO leverages the emerging health data standard Fast Healthcare Interoperability Resources (FHIR).

View Article: PubMed Central - PubMed

Affiliation: Computational Health Informatics Program, Boston Children's Hospital, Boston, Massachusetts, United States of America.

ABSTRACT
A renewed interest by consumer information technology giants in the healthcare domain is focused on transforming smartphones into personal health data storage devices. With the introduction of the open source ResearchKit, Apple provides a framework for researchers to inform and consent research subjects, and to readily collect personal health data and patient reported outcomes (PRO) from distributed populations. However, being research backend agnostic, ResearchKit does not provide data transmission facilities, leaving research apps disconnected from the health system. Personal health data and PROs are of the most value when presented in context along with health system data. Our aim was to build a toolchain that allows easy and secure integration of personal health and PRO data into an open source platform widely adopted across 140 academic medical centers. We present C3-PRO: the Consent, Contact, and Community framework for Patient Reported Outcomes. This open source toolchain connects, in a standards-compliant fashion, any ResearchKit app to the widely-used clinical research infrastructure Informatics for Integrating Biology and the Bedside (i2b2). C3-PRO leverages the emerging health data standard Fast Healthcare Interoperability Resources (FHIR).

Show MeSH
Related in: MedlinePlus