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Evaluation of the Families SHARE workbook: an educational tool outlining disease risk and healthy guidelines to reduce risk of heart disease, diabetes, breast cancer and colorectal cancer.

Koehly LM, Morris BA, Skapinsky K, Goergen A, Ludden A - BMC Public Health (2015)

Bottom Line: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale).At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

View Article: PubMed Central - PubMed

Affiliation: Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Building 31, Rm B1B54, Bethesda, MD, 20892-2073, USA. koehlyl@mail.nih.gov.

ABSTRACT

Background: Common diseases such as heart disease, diabetes, and cancer are etiologically complex with multiple risk factors (e.g., environment, genetic, lifestyle). These risk factors tend to cluster in families, making families an important social context for intervention and lifestyle-focused disease prevention. The Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook was designed as an educational tool outlining family health history based risk of heart disease, type 2 diabetes, breast cancer, and colorectal cancer. The current paper describes the steps taken to develop and evaluate the workbook employing a user-centered design approach.

Methods: The workbook was developed in four steps, culminating in an evaluation focusing on understanding and usability of the tool. The evaluation was based on two Phases of data collected from a sample of mothers of young children in the Washington, D.C., area. A baseline assessment and follow-up approximately two weeks after receipt of the workbook were conducted, as well as focus groups with participants. The design of the workbook was refined in response to participant feedback from the first evaluation Phase and subsequently re-evaluated with a new sample.

Results: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale). In addition, 100 % of users were able to use the algorithm to assess their disease risk and over 60 % used the algorithm to assess family members' disease risk. At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.

Conclusions: The Families SHARE workbook was developed and evaluated resulting in a family health history tool that is both understandable and usable by key stakeholders. This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

Trial registration: ClinicalTrials.gov, NCT01498276 . Registered 21 December 2011.

No MeSH data available.


Related in: MedlinePlus

Flow diagram for systematic review of the literature on family health history based risk assessments. This figure characterizes the process guiding the systematic review of the literature on family health history-based disease risk algorithms. The first step involved searching within Academic Search Premier and Pub Med based on a set of key search terms, limiting years of publication between January, 1982 and April, 2011
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Related In: Results  -  Collection

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Fig2: Flow diagram for systematic review of the literature on family health history based risk assessments. This figure characterizes the process guiding the systematic review of the literature on family health history-based disease risk algorithms. The first step involved searching within Academic Search Premier and Pub Med based on a set of key search terms, limiting years of publication between January, 1982 and April, 2011

Mentions: Thus, it was decided that the risk algorithm developed for the Families SHARE workbook should incorporate the “least common denominator” of risk criteria while being stringent enough to preclude overestimation of risk. To determine these criteria, a systematic literature search was conducted throughout the Academic Search Premier and PubMed databases. The terms “‘family history’ and risk and (assessment or algorithm or calculation) and (breast cancer or colo* cancer or diabetes or heart disease or myocardial infarction or coronary artery disease)” yielded 1,329 results published between January, 1982 and April, 2011 (see Fig. 2).Fig. 2


Evaluation of the Families SHARE workbook: an educational tool outlining disease risk and healthy guidelines to reduce risk of heart disease, diabetes, breast cancer and colorectal cancer.

Koehly LM, Morris BA, Skapinsky K, Goergen A, Ludden A - BMC Public Health (2015)

Flow diagram for systematic review of the literature on family health history based risk assessments. This figure characterizes the process guiding the systematic review of the literature on family health history-based disease risk algorithms. The first step involved searching within Academic Search Premier and Pub Med based on a set of key search terms, limiting years of publication between January, 1982 and April, 2011
© Copyright Policy - OpenAccess
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC4643512&req=5

Fig2: Flow diagram for systematic review of the literature on family health history based risk assessments. This figure characterizes the process guiding the systematic review of the literature on family health history-based disease risk algorithms. The first step involved searching within Academic Search Premier and Pub Med based on a set of key search terms, limiting years of publication between January, 1982 and April, 2011
Mentions: Thus, it was decided that the risk algorithm developed for the Families SHARE workbook should incorporate the “least common denominator” of risk criteria while being stringent enough to preclude overestimation of risk. To determine these criteria, a systematic literature search was conducted throughout the Academic Search Premier and PubMed databases. The terms “‘family history’ and risk and (assessment or algorithm or calculation) and (breast cancer or colo* cancer or diabetes or heart disease or myocardial infarction or coronary artery disease)” yielded 1,329 results published between January, 1982 and April, 2011 (see Fig. 2).Fig. 2

Bottom Line: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale).At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

View Article: PubMed Central - PubMed

Affiliation: Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Building 31, Rm B1B54, Bethesda, MD, 20892-2073, USA. koehlyl@mail.nih.gov.

ABSTRACT

Background: Common diseases such as heart disease, diabetes, and cancer are etiologically complex with multiple risk factors (e.g., environment, genetic, lifestyle). These risk factors tend to cluster in families, making families an important social context for intervention and lifestyle-focused disease prevention. The Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook was designed as an educational tool outlining family health history based risk of heart disease, type 2 diabetes, breast cancer, and colorectal cancer. The current paper describes the steps taken to develop and evaluate the workbook employing a user-centered design approach.

Methods: The workbook was developed in four steps, culminating in an evaluation focusing on understanding and usability of the tool. The evaluation was based on two Phases of data collected from a sample of mothers of young children in the Washington, D.C., area. A baseline assessment and follow-up approximately two weeks after receipt of the workbook were conducted, as well as focus groups with participants. The design of the workbook was refined in response to participant feedback from the first evaluation Phase and subsequently re-evaluated with a new sample.

Results: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale). In addition, 100 % of users were able to use the algorithm to assess their disease risk and over 60 % used the algorithm to assess family members' disease risk. At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.

Conclusions: The Families SHARE workbook was developed and evaluated resulting in a family health history tool that is both understandable and usable by key stakeholders. This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

Trial registration: ClinicalTrials.gov, NCT01498276 . Registered 21 December 2011.

No MeSH data available.


Related in: MedlinePlus