Limits...
Evaluation of the Families SHARE workbook: an educational tool outlining disease risk and healthy guidelines to reduce risk of heart disease, diabetes, breast cancer and colorectal cancer.

Koehly LM, Morris BA, Skapinsky K, Goergen A, Ludden A - BMC Public Health (2015)

Bottom Line: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale).At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

View Article: PubMed Central - PubMed

Affiliation: Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Building 31, Rm B1B54, Bethesda, MD, 20892-2073, USA. koehlyl@mail.nih.gov.

ABSTRACT

Background: Common diseases such as heart disease, diabetes, and cancer are etiologically complex with multiple risk factors (e.g., environment, genetic, lifestyle). These risk factors tend to cluster in families, making families an important social context for intervention and lifestyle-focused disease prevention. The Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook was designed as an educational tool outlining family health history based risk of heart disease, type 2 diabetes, breast cancer, and colorectal cancer. The current paper describes the steps taken to develop and evaluate the workbook employing a user-centered design approach.

Methods: The workbook was developed in four steps, culminating in an evaluation focusing on understanding and usability of the tool. The evaluation was based on two Phases of data collected from a sample of mothers of young children in the Washington, D.C., area. A baseline assessment and follow-up approximately two weeks after receipt of the workbook were conducted, as well as focus groups with participants. The design of the workbook was refined in response to participant feedback from the first evaluation Phase and subsequently re-evaluated with a new sample.

Results: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale). In addition, 100 % of users were able to use the algorithm to assess their disease risk and over 60 % used the algorithm to assess family members' disease risk. At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.

Conclusions: The Families SHARE workbook was developed and evaluated resulting in a family health history tool that is both understandable and usable by key stakeholders. This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

Trial registration: ClinicalTrials.gov, NCT01498276 . Registered 21 December 2011.

No MeSH data available.


Related in: MedlinePlus

Schema used to develop and evaluate the Families SHARE workbook. The Families SHARE workbook was developed and evaluated within a four step process. In the first step, we developed the family health history based risk algorithm based on a systematic review of the literature. Step 2 involved identification of key workbook components using concepts from the Health Belief Model; these components were integrated into the workbook design in Step 3. A rigorous evaluation was completed in Step 4. The evaluation was conducted in two Phases such that the workbook was revised based on recommendations from Phase 1 and re-evaluated in Phase 2
© Copyright Policy - OpenAccess
Related In: Results  -  Collection

License 1 - License 2
getmorefigures.php?uid=PMC4643512&req=5

Fig1: Schema used to develop and evaluate the Families SHARE workbook. The Families SHARE workbook was developed and evaluated within a four step process. In the first step, we developed the family health history based risk algorithm based on a systematic review of the literature. Step 2 involved identification of key workbook components using concepts from the Health Belief Model; these components were integrated into the workbook design in Step 3. A rigorous evaluation was completed in Step 4. The evaluation was conducted in two Phases such that the workbook was revised based on recommendations from Phase 1 and re-evaluated in Phase 2

Mentions: The current report focuses on the development of an acceptable, understandable, and usable tool to facilitate communication of FHH information. The purpose of the Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook is twofold: first, to engage active learning processes and educate individuals regarding their family risk of disease by connecting their FHH to risk through a simplified risk algorithm; and second, to provide behavioral and screening guidelines that have the potential to reduce disease risk. By providing a risk algorithm, the user becomes actively engaged in computing her own as well as her family members’ FHH-based risk; such active participation is hypothesized to facilitate an individual’s understanding of FHH and its relevance to health both for the user and their broader family system. Through an understanding of family members’ shared risk, interpersonal mechanisms that shift family norms towards healthful, risk-reducing behaviors may be activated. The workbook development and evaluation process, outlined in the current report, was completed in four steps which are detailed in Fig. 1 and the Methods section that follows.Fig. 1


Evaluation of the Families SHARE workbook: an educational tool outlining disease risk and healthy guidelines to reduce risk of heart disease, diabetes, breast cancer and colorectal cancer.

Koehly LM, Morris BA, Skapinsky K, Goergen A, Ludden A - BMC Public Health (2015)

Schema used to develop and evaluate the Families SHARE workbook. The Families SHARE workbook was developed and evaluated within a four step process. In the first step, we developed the family health history based risk algorithm based on a systematic review of the literature. Step 2 involved identification of key workbook components using concepts from the Health Belief Model; these components were integrated into the workbook design in Step 3. A rigorous evaluation was completed in Step 4. The evaluation was conducted in two Phases such that the workbook was revised based on recommendations from Phase 1 and re-evaluated in Phase 2
© Copyright Policy - OpenAccess
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC4643512&req=5

Fig1: Schema used to develop and evaluate the Families SHARE workbook. The Families SHARE workbook was developed and evaluated within a four step process. In the first step, we developed the family health history based risk algorithm based on a systematic review of the literature. Step 2 involved identification of key workbook components using concepts from the Health Belief Model; these components were integrated into the workbook design in Step 3. A rigorous evaluation was completed in Step 4. The evaluation was conducted in two Phases such that the workbook was revised based on recommendations from Phase 1 and re-evaluated in Phase 2
Mentions: The current report focuses on the development of an acceptable, understandable, and usable tool to facilitate communication of FHH information. The purpose of the Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook is twofold: first, to engage active learning processes and educate individuals regarding their family risk of disease by connecting their FHH to risk through a simplified risk algorithm; and second, to provide behavioral and screening guidelines that have the potential to reduce disease risk. By providing a risk algorithm, the user becomes actively engaged in computing her own as well as her family members’ FHH-based risk; such active participation is hypothesized to facilitate an individual’s understanding of FHH and its relevance to health both for the user and their broader family system. Through an understanding of family members’ shared risk, interpersonal mechanisms that shift family norms towards healthful, risk-reducing behaviors may be activated. The workbook development and evaluation process, outlined in the current report, was completed in four steps which are detailed in Fig. 1 and the Methods section that follows.Fig. 1

Bottom Line: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale).At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

View Article: PubMed Central - PubMed

Affiliation: Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Building 31, Rm B1B54, Bethesda, MD, 20892-2073, USA. koehlyl@mail.nih.gov.

ABSTRACT

Background: Common diseases such as heart disease, diabetes, and cancer are etiologically complex with multiple risk factors (e.g., environment, genetic, lifestyle). These risk factors tend to cluster in families, making families an important social context for intervention and lifestyle-focused disease prevention. The Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook was designed as an educational tool outlining family health history based risk of heart disease, type 2 diabetes, breast cancer, and colorectal cancer. The current paper describes the steps taken to develop and evaluate the workbook employing a user-centered design approach.

Methods: The workbook was developed in four steps, culminating in an evaluation focusing on understanding and usability of the tool. The evaluation was based on two Phases of data collected from a sample of mothers of young children in the Washington, D.C., area. A baseline assessment and follow-up approximately two weeks after receipt of the workbook were conducted, as well as focus groups with participants. The design of the workbook was refined in response to participant feedback from the first evaluation Phase and subsequently re-evaluated with a new sample.

Results: After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale). In addition, 100 % of users were able to use the algorithm to assess their disease risk and over 60 % used the algorithm to assess family members' disease risk. At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.

Conclusions: The Families SHARE workbook was developed and evaluated resulting in a family health history tool that is both understandable and usable by key stakeholders. This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

Trial registration: ClinicalTrials.gov, NCT01498276 . Registered 21 December 2011.

No MeSH data available.


Related in: MedlinePlus