Limits...
'Why does it happen like this?' Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families.

Hunt A, Brown E, Coad J, Staniszewska S, Hacking S, Chesworth B, Chambers L - J Child Health Care (2013)

Bottom Line: An overarching theme from parents was 'Why does it happen like this?' Services did not seem designed to meet their needs.Two questions to be addressed by the evaluation are (1) to what extent are services designed to meet the needs of children and families and (2) to what extent are children, young people and their families consulted about what they need?Consultations with families and service providers encouraged us to continue their involvement as partners in the evaluation.

View Article: PubMed Central - PubMed

Affiliation: University of Central Lancashire, UK ahunt@uclan.ac.uk.

No MeSH data available.


Part of research team ready for action at the aquarium (all pictured with permission).
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fig1-1367493513510630: Part of research team ready for action at the aquarium (all pictured with permission).

Mentions: An open day was held at a Sea-Life aquarium in Birmingham, West Midlands, England. The event was open to children, young people and their families and also for professionals who wished to attend. Activities were aimed at engaging participants in either group or individual discussions with researchers about services in the area (Figure 1). Refreshments were provided and participants were able to come and go throughout the day at their leisure.


'Why does it happen like this?' Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families.

Hunt A, Brown E, Coad J, Staniszewska S, Hacking S, Chesworth B, Chambers L - J Child Health Care (2013)

Part of research team ready for action at the aquarium (all pictured with permission).
© Copyright Policy - open-access
Related In: Results  -  Collection

License 1 - License 2 - License 3
Show All Figures
getmorefigures.php?uid=PMC4561454&req=5

fig1-1367493513510630: Part of research team ready for action at the aquarium (all pictured with permission).
Mentions: An open day was held at a Sea-Life aquarium in Birmingham, West Midlands, England. The event was open to children, young people and their families and also for professionals who wished to attend. Activities were aimed at engaging participants in either group or individual discussions with researchers about services in the area (Figure 1). Refreshments were provided and participants were able to come and go throughout the day at their leisure.

Bottom Line: An overarching theme from parents was 'Why does it happen like this?' Services did not seem designed to meet their needs.Two questions to be addressed by the evaluation are (1) to what extent are services designed to meet the needs of children and families and (2) to what extent are children, young people and their families consulted about what they need?Consultations with families and service providers encouraged us to continue their involvement as partners in the evaluation.

View Article: PubMed Central - PubMed

Affiliation: University of Central Lancashire, UK ahunt@uclan.ac.uk.

No MeSH data available.