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An international internet survey of the experiences of 1,714 mothers with a late stillbirth: the STARS cohort study.

Warland J, O'Brien LM, Heazell AE, Mitchell EA, STARS Consorti - BMC Pregnancy Childbirth (2015)

Bottom Line: A quarter of participants believed that their baby's death was due to a cord issue and another 18% indicated that they did not know the reason why their baby died.In many cases (55%) the mother believed the cause of death was different to that told by clinicians.The potential importance of maternal sleep is highlighted by the finding of more than half the mothers believing their baby died during the night.

View Article: PubMed Central - PubMed

Affiliation: Mothers, Babies and Families: Health Research Group, School of Nursing and Midwifery University of South Australia, Adelaide, SA, Australia. jane.warland@unisa.edu.au.

ABSTRACT

Background: Stillbirth occurring after 28 weeks gestation affects between 1.5-4.5 per 1,000 births in high-income countries. The majority of stillbirths in this setting occur in women without risk factors. In addition, many established risk factors such as iparity and maternal age are not amenable to modification during pregnancy. Identification of other risk factors which could be amenable to change in pregnancy should be a priority in stillbirth prevention research. Therefore, this study aimed to utilise an online survey asking women who had a stillbirth about their pregnancy in order to identify any common symptoms and experiences.

Methods: A web-based survey.

Results: A total of 1,714 women who had experienced a stillbirth >3 weeks prior to enrolment completed the survey. Common experiences identified were: perception of changes in fetal movement (63% of respondents), reports of a "gut instinct" that something was wrong (68%), and perceived time of death occurring overnight (56%). A quarter of participants believed that their baby's death was due to a cord issue and another 18% indicated that they did not know the reason why their baby died. In many cases (55%) the mother believed the cause of death was different to that told by clinicians.

Conclusions: This study confirms the association between altered fetal movements and stillbirth and highlights novel associations that merit closer scrutiny including a maternal gut instinct that something was wrong. The potential importance of maternal sleep is highlighted by the finding of more than half the mothers believing their baby died during the night. This study supports the importance of listening to mothers' concerns and symptoms during pregnancy and highlights the need for thorough investigation of stillbirth and appropriate explanation being given to parents.

No MeSH data available.


Related in: MedlinePlus

a Median duration of time since stillbirth b Median gestational age (weeks) at the time of stillbirth
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Fig1: a Median duration of time since stillbirth b Median gestational age (weeks) at the time of stillbirth

Mentions: In total, 1714 women who had experienced a stillbirth >3 weeks prior to enrollment completed the survey. Median duration of time since the stillbirth was 19.0 months (0.75-570.0 months; Fig. 1a). Demographics of the sample, including the participant’s country of residence, are shown in Table 1. The median age of women at the time of stillbirth was 30.0 years (18–47 years). The majority (98.6 %) of respondents were from high-income countries with 1.4 % coming from 15 different low or middle-income countries. The median gestation at the time of the stillbirth was 37 weeks (range 28–42 weeks; Fig. 1b), and 50.5 % of the babies were male.Fig. 1


An international internet survey of the experiences of 1,714 mothers with a late stillbirth: the STARS cohort study.

Warland J, O'Brien LM, Heazell AE, Mitchell EA, STARS Consorti - BMC Pregnancy Childbirth (2015)

a Median duration of time since stillbirth b Median gestational age (weeks) at the time of stillbirth
© Copyright Policy - OpenAccess
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC4537542&req=5

Fig1: a Median duration of time since stillbirth b Median gestational age (weeks) at the time of stillbirth
Mentions: In total, 1714 women who had experienced a stillbirth >3 weeks prior to enrollment completed the survey. Median duration of time since the stillbirth was 19.0 months (0.75-570.0 months; Fig. 1a). Demographics of the sample, including the participant’s country of residence, are shown in Table 1. The median age of women at the time of stillbirth was 30.0 years (18–47 years). The majority (98.6 %) of respondents were from high-income countries with 1.4 % coming from 15 different low or middle-income countries. The median gestation at the time of the stillbirth was 37 weeks (range 28–42 weeks; Fig. 1b), and 50.5 % of the babies were male.Fig. 1

Bottom Line: A quarter of participants believed that their baby's death was due to a cord issue and another 18% indicated that they did not know the reason why their baby died.In many cases (55%) the mother believed the cause of death was different to that told by clinicians.The potential importance of maternal sleep is highlighted by the finding of more than half the mothers believing their baby died during the night.

View Article: PubMed Central - PubMed

Affiliation: Mothers, Babies and Families: Health Research Group, School of Nursing and Midwifery University of South Australia, Adelaide, SA, Australia. jane.warland@unisa.edu.au.

ABSTRACT

Background: Stillbirth occurring after 28 weeks gestation affects between 1.5-4.5 per 1,000 births in high-income countries. The majority of stillbirths in this setting occur in women without risk factors. In addition, many established risk factors such as iparity and maternal age are not amenable to modification during pregnancy. Identification of other risk factors which could be amenable to change in pregnancy should be a priority in stillbirth prevention research. Therefore, this study aimed to utilise an online survey asking women who had a stillbirth about their pregnancy in order to identify any common symptoms and experiences.

Methods: A web-based survey.

Results: A total of 1,714 women who had experienced a stillbirth >3 weeks prior to enrolment completed the survey. Common experiences identified were: perception of changes in fetal movement (63% of respondents), reports of a "gut instinct" that something was wrong (68%), and perceived time of death occurring overnight (56%). A quarter of participants believed that their baby's death was due to a cord issue and another 18% indicated that they did not know the reason why their baby died. In many cases (55%) the mother believed the cause of death was different to that told by clinicians.

Conclusions: This study confirms the association between altered fetal movements and stillbirth and highlights novel associations that merit closer scrutiny including a maternal gut instinct that something was wrong. The potential importance of maternal sleep is highlighted by the finding of more than half the mothers believing their baby died during the night. This study supports the importance of listening to mothers' concerns and symptoms during pregnancy and highlights the need for thorough investigation of stillbirth and appropriate explanation being given to parents.

No MeSH data available.


Related in: MedlinePlus