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The Kanker Nazorg Wijzer (Cancer Aftercare Guide) protocol: the systematic development of a web-based computer tailored intervention providing psychosocial and lifestyle support for cancer survivors.

Willems RA, Bolman CA, Mesters I, Kanera IM, Beaulen AA, Lechner L - BMC Cancer (2015)

Bottom Line: This resulted in seven problem areas that were addressed in the intervention: cancer-related fatigue, return to work, anxiety and depression, social relationships and intimacy, physical activity, diet, and smoking.Based on their answers, participants receive tailored advice about which problem areas deserve their attention.Participants were recruited from November 2013 through June 2014 by hospital staff from 21 hospitals in the Netherlands.

View Article: PubMed Central - PubMed

Affiliation: Faculty of Psychology and Educational Sciences, Open University of the Netherlands, P.O. Box 2960, 6401 DL, Heerlen, The Netherlands. roy.willems@ou.nl.

ABSTRACT

Background: After primary treatment, many cancer survivors experience psychosocial, physical, and lifestyle problems. To address these issues, we developed a web-based computer tailored intervention, the Kanker Nazorg Wijzer (Cancer Aftercare Guide), aimed at providing psychosocial and lifestyle support for cancer survivors. The purpose of this article is to describe the systematic development and the study design for evaluation of this theory and empirical based intervention.

Methods/design: For the development of the intervention, the steps of the Intervention Mapping protocol were followed. A needs assessment was performed consisting of a literature study, focus group interviews, and a survey study to get more insight into cancer survivors' health issues. This resulted in seven problem areas that were addressed in the intervention: cancer-related fatigue, return to work, anxiety and depression, social relationships and intimacy, physical activity, diet, and smoking. To address these problem areas, the principles of problem-solving therapy and cognitive behavioral therapy are used. At the start of the intervention, participants have to fill in a screening questionnaire. Based on their answers, participants receive tailored advice about which problem areas deserve their attention. Participants were recruited from November 2013 through June 2014 by hospital staff from 21 hospitals in the Netherlands. Patients were selected either during follow-up visits to the hospital or from reviews of the patients' files. The effectiveness of the intervention is being tested in a randomized controlled trial consisting of an intervention group (n = 231) and waiting list control group (n = 231) with a baseline measurement and follow-up measurements at 3, 6, and 12 months.

Discussion: Using the Intervention Mapping protocol resulted in a theory and evidence-based intervention providing tailored advice to cancer survivors on how to cope with psychosocial and lifestyle issues after primary treatment.

Trial registration: Dutch Trial Register NTR3375.

No MeSH data available.


Related in: MedlinePlus

Overview of the scope and sequence of the modules
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Fig1: Overview of the scope and sequence of the modules

Mentions: Participants of the focus groups (see Step 1) expressed the need to be informed about commonly experienced complaints after cancer treatment. Therefore, an additional module covering residual symptoms from cancer treatment was added to the KNW. In this module, general information is given on the most common physical complaints experienced after primary treatment, tips are given on how to deal with these symptoms, and advice is given to seek medical assistance for more information or help. For an overview of the scope and sequence of all modules, see Fig. 1.Fig. 1


The Kanker Nazorg Wijzer (Cancer Aftercare Guide) protocol: the systematic development of a web-based computer tailored intervention providing psychosocial and lifestyle support for cancer survivors.

Willems RA, Bolman CA, Mesters I, Kanera IM, Beaulen AA, Lechner L - BMC Cancer (2015)

Overview of the scope and sequence of the modules
© Copyright Policy - OpenAccess
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC4532144&req=5

Fig1: Overview of the scope and sequence of the modules
Mentions: Participants of the focus groups (see Step 1) expressed the need to be informed about commonly experienced complaints after cancer treatment. Therefore, an additional module covering residual symptoms from cancer treatment was added to the KNW. In this module, general information is given on the most common physical complaints experienced after primary treatment, tips are given on how to deal with these symptoms, and advice is given to seek medical assistance for more information or help. For an overview of the scope and sequence of all modules, see Fig. 1.Fig. 1

Bottom Line: This resulted in seven problem areas that were addressed in the intervention: cancer-related fatigue, return to work, anxiety and depression, social relationships and intimacy, physical activity, diet, and smoking.Based on their answers, participants receive tailored advice about which problem areas deserve their attention.Participants were recruited from November 2013 through June 2014 by hospital staff from 21 hospitals in the Netherlands.

View Article: PubMed Central - PubMed

Affiliation: Faculty of Psychology and Educational Sciences, Open University of the Netherlands, P.O. Box 2960, 6401 DL, Heerlen, The Netherlands. roy.willems@ou.nl.

ABSTRACT

Background: After primary treatment, many cancer survivors experience psychosocial, physical, and lifestyle problems. To address these issues, we developed a web-based computer tailored intervention, the Kanker Nazorg Wijzer (Cancer Aftercare Guide), aimed at providing psychosocial and lifestyle support for cancer survivors. The purpose of this article is to describe the systematic development and the study design for evaluation of this theory and empirical based intervention.

Methods/design: For the development of the intervention, the steps of the Intervention Mapping protocol were followed. A needs assessment was performed consisting of a literature study, focus group interviews, and a survey study to get more insight into cancer survivors' health issues. This resulted in seven problem areas that were addressed in the intervention: cancer-related fatigue, return to work, anxiety and depression, social relationships and intimacy, physical activity, diet, and smoking. To address these problem areas, the principles of problem-solving therapy and cognitive behavioral therapy are used. At the start of the intervention, participants have to fill in a screening questionnaire. Based on their answers, participants receive tailored advice about which problem areas deserve their attention. Participants were recruited from November 2013 through June 2014 by hospital staff from 21 hospitals in the Netherlands. Patients were selected either during follow-up visits to the hospital or from reviews of the patients' files. The effectiveness of the intervention is being tested in a randomized controlled trial consisting of an intervention group (n = 231) and waiting list control group (n = 231) with a baseline measurement and follow-up measurements at 3, 6, and 12 months.

Discussion: Using the Intervention Mapping protocol resulted in a theory and evidence-based intervention providing tailored advice to cancer survivors on how to cope with psychosocial and lifestyle issues after primary treatment.

Trial registration: Dutch Trial Register NTR3375.

No MeSH data available.


Related in: MedlinePlus