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Measuring the Caregiver Burden of Caring for Community-Residing People with Alzheimer's Disease.

Yu H, Wang X, He R, Liang R, Zhou L - PLoS ONE (2015)

Bottom Line: The main outcome in this study was caregiver burden.Greater social support (r = -0.23, p<0.001), family function (r = -0.17, p = 0.015) and caregiving experience (r = -0.16, p = 0.012) were related to decreased caregiver burden.Focusing on patient factors and promoting caregiver care will be helpful in lowering the perceived burden of caregiving.

View Article: PubMed Central - PubMed

Affiliation: Department of Health Statistics, School of Public Health, Shanxi Medical University, Taiyuan, China.

ABSTRACT

Objectives: To assess the direct and indirect effects of patient or caregiver factors on caregiver burden of caring for community-residing people with mild Alzheimer's disease (AD).

Methods: We conducted a cross-sectional study of patients diagnosed with AD from two hospitals and three communities in Taiyuan, China and their caregivers. For this survey, 200 patients with mild AD and their caregivers were selected. Caregivers were asked to provide sociodemographic information including age, gender, relationship with the patient, level of education, and number of contact hours per week with the patient. Caregiver burden was assessed using the Caregivers Burden Inventory. The caregivers also completed other measures including the Positive Aspects of Caregiving, the Family Adaptation, Partnership, Growth, Affection, and Resolve, and the Social Support Rating Scale. The patients with AD completed the Montreal Cognitive Assessment; their caregivers completed the Activities of Daily Living Scale and a questionnaire about the patients' Behavioral and Psychological symptoms of Dementia. The main outcome in this study was caregiver burden. The care receivers' level of cognitive function, physical function, and behavioral problems were treated as original stress; the primary appraisal variable was measured as the number of hours of caregiving in the previous week reported by the caregiver. Mediator variables included perceived social support, family function, and caregiving experience. Path analysis was used to build the interrelationship among caregiver burden and patient or caregiver factors.

Results: A lower level of cognitive function in patients (r = -0.28, p<0.001) and longer hours of caregiving (r = 0.17, p = 0.019) were related to increased caregiver burden. Greater social support (r = -0.23, p<0.001), family function (r = -0.17, p = 0.015) and caregiving experience (r = -0.16, p = 0.012) were related to decreased caregiver burden. Social support (r = 0.16, p = 0.040) and family function (r = 0.25, p = 0.002) were directly related to patients' level of cognitive functioning, but were mediator factors between level of cognitive function in patients and caregiver burden. Similarly, social support was a mediator factor between patients' daily function (r = -0.23, p = 0.004) and caregiver burden; while caregiving experience mediated the link between behavioral and psychological symptoms in patients (r = 0.36, p<0.001) and caregiver burden.

Conclusion: Level of cognitive function and hours of caregiving were directly related to caregiver's burden. Social support, family function and caregiving experience could mediate the relationship between patient factors and caregiver burden. Focusing on patient factors and promoting caregiver care will be helpful in lowering the perceived burden of caregiving.

No MeSH data available.


Related in: MedlinePlus

Conceptual model.Based on Yates et al. (1999) and Chappell and Reid (2002).
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pone.0132168.g001: Conceptual model.Based on Yates et al. (1999) and Chappell and Reid (2002).

Mentions: Identifying possible predictive factors of perceived burden among caregivers of AD patients could improve integrated healthcare strategies for this type of illness. A number of variables, including the caregiver’s sociodemographic characteristics, the clinical characteristics of the patient’s illness, and the social support and personal resources available to the caregiver determine the perceived burden of caregiving [6–8]. A version of the caregiver stress/appraisal model was proposed by Yates et al.[9] and assessed by Chappell and Reid [10]. Currently there is no consensus regarding the predictors of high levels of burden of AD caregivers especially those caring for patients with mild dementia. We used an adaptive version of the stress-appraisal model of Chappell and Reid and assumed that: (1) primary caregiver-stressors (cognitive impairments, functional disability, and problem behaviors) lead directly and indirectly to caregiver burden; (2) this indirect relationship is mediated by one of the three mediator variables: perceived social support, family function, and caregiving experience; (3) the number of caregiving hours is treated as the primary appraisal variable. Fig 1 represents this conceptual model.


Measuring the Caregiver Burden of Caring for Community-Residing People with Alzheimer's Disease.

Yu H, Wang X, He R, Liang R, Zhou L - PLoS ONE (2015)

Conceptual model.Based on Yates et al. (1999) and Chappell and Reid (2002).
© Copyright Policy
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC4496054&req=5

pone.0132168.g001: Conceptual model.Based on Yates et al. (1999) and Chappell and Reid (2002).
Mentions: Identifying possible predictive factors of perceived burden among caregivers of AD patients could improve integrated healthcare strategies for this type of illness. A number of variables, including the caregiver’s sociodemographic characteristics, the clinical characteristics of the patient’s illness, and the social support and personal resources available to the caregiver determine the perceived burden of caregiving [6–8]. A version of the caregiver stress/appraisal model was proposed by Yates et al.[9] and assessed by Chappell and Reid [10]. Currently there is no consensus regarding the predictors of high levels of burden of AD caregivers especially those caring for patients with mild dementia. We used an adaptive version of the stress-appraisal model of Chappell and Reid and assumed that: (1) primary caregiver-stressors (cognitive impairments, functional disability, and problem behaviors) lead directly and indirectly to caregiver burden; (2) this indirect relationship is mediated by one of the three mediator variables: perceived social support, family function, and caregiving experience; (3) the number of caregiving hours is treated as the primary appraisal variable. Fig 1 represents this conceptual model.

Bottom Line: The main outcome in this study was caregiver burden.Greater social support (r = -0.23, p<0.001), family function (r = -0.17, p = 0.015) and caregiving experience (r = -0.16, p = 0.012) were related to decreased caregiver burden.Focusing on patient factors and promoting caregiver care will be helpful in lowering the perceived burden of caregiving.

View Article: PubMed Central - PubMed

Affiliation: Department of Health Statistics, School of Public Health, Shanxi Medical University, Taiyuan, China.

ABSTRACT

Objectives: To assess the direct and indirect effects of patient or caregiver factors on caregiver burden of caring for community-residing people with mild Alzheimer's disease (AD).

Methods: We conducted a cross-sectional study of patients diagnosed with AD from two hospitals and three communities in Taiyuan, China and their caregivers. For this survey, 200 patients with mild AD and their caregivers were selected. Caregivers were asked to provide sociodemographic information including age, gender, relationship with the patient, level of education, and number of contact hours per week with the patient. Caregiver burden was assessed using the Caregivers Burden Inventory. The caregivers also completed other measures including the Positive Aspects of Caregiving, the Family Adaptation, Partnership, Growth, Affection, and Resolve, and the Social Support Rating Scale. The patients with AD completed the Montreal Cognitive Assessment; their caregivers completed the Activities of Daily Living Scale and a questionnaire about the patients' Behavioral and Psychological symptoms of Dementia. The main outcome in this study was caregiver burden. The care receivers' level of cognitive function, physical function, and behavioral problems were treated as original stress; the primary appraisal variable was measured as the number of hours of caregiving in the previous week reported by the caregiver. Mediator variables included perceived social support, family function, and caregiving experience. Path analysis was used to build the interrelationship among caregiver burden and patient or caregiver factors.

Results: A lower level of cognitive function in patients (r = -0.28, p<0.001) and longer hours of caregiving (r = 0.17, p = 0.019) were related to increased caregiver burden. Greater social support (r = -0.23, p<0.001), family function (r = -0.17, p = 0.015) and caregiving experience (r = -0.16, p = 0.012) were related to decreased caregiver burden. Social support (r = 0.16, p = 0.040) and family function (r = 0.25, p = 0.002) were directly related to patients' level of cognitive functioning, but were mediator factors between level of cognitive function in patients and caregiver burden. Similarly, social support was a mediator factor between patients' daily function (r = -0.23, p = 0.004) and caregiver burden; while caregiving experience mediated the link between behavioral and psychological symptoms in patients (r = 0.36, p<0.001) and caregiver burden.

Conclusion: Level of cognitive function and hours of caregiving were directly related to caregiver's burden. Social support, family function and caregiving experience could mediate the relationship between patient factors and caregiver burden. Focusing on patient factors and promoting caregiver care will be helpful in lowering the perceived burden of caregiving.

No MeSH data available.


Related in: MedlinePlus