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Parent distress reactions following a serious illness or injury in their child: a protocol paper for the take a breath cohort study.

Muscara F, Burke K, McCarthy MC, Anderson VA, Hearps SJ, Hearps SJ, Dimovski A, Nicholson JM - BMC Psychiatry (2015)

Bottom Line: Eligible parents were those who were caregivers of children aged 0-to 18-years admitted to the Oncology, Cardiology, Neurology and Pediatric Intensive Care Unit.Parents were recruited acutely, and completed self-report questionnaires at four time-points: within the first 4 weeks (T1:); then at 4 months (T2); 7 months (T3); and 19 months (T4) after admission.Given that it will also identify risk and resilience factors, and map the course of parent outcomes over an 18 monthperiod, it has the potential to inform novel strategies for intervention.

View Article: PubMed Central - PubMed

Affiliation: Clinical Sciences, Murdoch Childrens Research Institute, The Royal Children's Hospital, Flemington Road, Parkville, VIC, 3052, Australia. frank.muscara@mcri.edu.au.

ABSTRACT

Background: Diagnosis of life threatening childhood illness or injury can lead to significant distress reactions in parents, with many experiencing clinically significant levels of post-traumatic stress symptoms. These symptoms can have long-term adverse impacts on parent mental health, family functioning, and the adjustment of the ill child. Independent studies have found such reactions in several different illness groups. However, very little research has systematically compared the prevalence, impact and trajectories over time of post-traumatic stress symptoms in parents across different childhood illness groups with an acute life threat. The current study seeks to map the course of post-traumatic stress reactions in parents of children with various life threatening illnesses over an 18 month period, and identify factors that predict successful adaptation in families.

Method/design: The current study described is of a prospective, longitudinal design. The sample included parents of children admitted to four major hospital departments at the Royal Children's Hospital, Melbourne, Australia, for a life threatening illness or injury. Eligible parents were those who were caregivers of children aged 0-to 18-years admitted to the Oncology, Cardiology, Neurology and Pediatric Intensive Care Unit. Parents were recruited acutely, and completed self-report questionnaires at four time-points: within the first 4 weeks (T1:); then at 4 months (T2); 7 months (T3); and 19 months (T4) after admission. Questionnaires assessed parent and child mental health and wellbeing, and a number of risk and reliance factors such child illness factors, parent demographic factors, and psychosocial factors.

Discussion: This study is one of the first to document the trajectory of post-traumatic stress responses in parents of very ill children, across illness groups. Given that it will also identify risk and resilience factors, and map the course of parent outcomes over an 18 monthperiod, it has the potential to inform novel strategies for intervention.

No MeSH data available.


Related in: MedlinePlus

Recruitment flow diagram for the Take a Breath Cohort Study, across the three illness groups
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Fig3: Recruitment flow diagram for the Take a Breath Cohort Study, across the three illness groups

Mentions: The sample consists of 256 parents of 192 children. Of the 256 parents, 70.3 % (180) are mothers, and there are 64 couples. This represents 37.4 % of 192 eligible families admitted over a 21 month period. In total, 68.1 % of eligible families that were approached consented to participate in the study. A sample much smaller than expected and required was obtained within the Neurology group. Given that many within this group were initially treated within PICU, it was decided to collapse the Neurology and PICU groups into a combined ‘Mixed Illness’ group to increase power in future analyses. A detailed breakdown of recruitment within each illness group is provided below, and the recruitment flow diagram within each of the three illness groups can be seen in Fig. 3.Fig. 3


Parent distress reactions following a serious illness or injury in their child: a protocol paper for the take a breath cohort study.

Muscara F, Burke K, McCarthy MC, Anderson VA, Hearps SJ, Hearps SJ, Dimovski A, Nicholson JM - BMC Psychiatry (2015)

Recruitment flow diagram for the Take a Breath Cohort Study, across the three illness groups
© Copyright Policy - open-access
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC4495936&req=5

Fig3: Recruitment flow diagram for the Take a Breath Cohort Study, across the three illness groups
Mentions: The sample consists of 256 parents of 192 children. Of the 256 parents, 70.3 % (180) are mothers, and there are 64 couples. This represents 37.4 % of 192 eligible families admitted over a 21 month period. In total, 68.1 % of eligible families that were approached consented to participate in the study. A sample much smaller than expected and required was obtained within the Neurology group. Given that many within this group were initially treated within PICU, it was decided to collapse the Neurology and PICU groups into a combined ‘Mixed Illness’ group to increase power in future analyses. A detailed breakdown of recruitment within each illness group is provided below, and the recruitment flow diagram within each of the three illness groups can be seen in Fig. 3.Fig. 3

Bottom Line: Eligible parents were those who were caregivers of children aged 0-to 18-years admitted to the Oncology, Cardiology, Neurology and Pediatric Intensive Care Unit.Parents were recruited acutely, and completed self-report questionnaires at four time-points: within the first 4 weeks (T1:); then at 4 months (T2); 7 months (T3); and 19 months (T4) after admission.Given that it will also identify risk and resilience factors, and map the course of parent outcomes over an 18 monthperiod, it has the potential to inform novel strategies for intervention.

View Article: PubMed Central - PubMed

Affiliation: Clinical Sciences, Murdoch Childrens Research Institute, The Royal Children's Hospital, Flemington Road, Parkville, VIC, 3052, Australia. frank.muscara@mcri.edu.au.

ABSTRACT

Background: Diagnosis of life threatening childhood illness or injury can lead to significant distress reactions in parents, with many experiencing clinically significant levels of post-traumatic stress symptoms. These symptoms can have long-term adverse impacts on parent mental health, family functioning, and the adjustment of the ill child. Independent studies have found such reactions in several different illness groups. However, very little research has systematically compared the prevalence, impact and trajectories over time of post-traumatic stress symptoms in parents across different childhood illness groups with an acute life threat. The current study seeks to map the course of post-traumatic stress reactions in parents of children with various life threatening illnesses over an 18 month period, and identify factors that predict successful adaptation in families.

Method/design: The current study described is of a prospective, longitudinal design. The sample included parents of children admitted to four major hospital departments at the Royal Children's Hospital, Melbourne, Australia, for a life threatening illness or injury. Eligible parents were those who were caregivers of children aged 0-to 18-years admitted to the Oncology, Cardiology, Neurology and Pediatric Intensive Care Unit. Parents were recruited acutely, and completed self-report questionnaires at four time-points: within the first 4 weeks (T1:); then at 4 months (T2); 7 months (T3); and 19 months (T4) after admission. Questionnaires assessed parent and child mental health and wellbeing, and a number of risk and reliance factors such child illness factors, parent demographic factors, and psychosocial factors.

Discussion: This study is one of the first to document the trajectory of post-traumatic stress responses in parents of very ill children, across illness groups. Given that it will also identify risk and resilience factors, and map the course of parent outcomes over an 18 monthperiod, it has the potential to inform novel strategies for intervention.

No MeSH data available.


Related in: MedlinePlus