Limits...
Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients.

Janssen IM, Gerhardus A, von Gersdorff GD, Baldamus CA, Schaller M, Barth C, Scheibler F - Patient Prefer Adherence (2015)

Bottom Line: The three most important outcomes were safety of treatment, health-related quality of life, and satisfaction with care.Outcomes concerning the delivery or provision of care and aspects influencing quality of life are rated by patients to be at least as important as clinical outcomes.Many of the outcomes judged to be important by the patients are not regularly considered in research, evaluation studies, or quality programs.

View Article: PubMed Central - PubMed

Affiliation: Department of Epidemiology and International Public Health, Bielefeld University, Bielefeld, Germany.

ABSTRACT

Background: Chronic kidney disease is an increasing health problem worldwide and in its final stage (stage V) can only be treated by renal replacement therapy, mostly hemodialysis. Hemodialysis has a major influence on the everyday life of patients and many patients report dissatisfaction with treatment. Little is known about which aspects of treatment are considered important by hemodialysis patients. The objective of this study was to rate the relative importance of different outcomes for hemodialysis patients and to analyze whether the relative importance differed among subgroups of patients.

Patients and methods: Within the framework of a yearly questionnaire which is distributed among patients receiving hemodialysis by the largest hemodialysis provider in Germany, we assessed the relative importance of 23 outcomes as rated on a discrete visual analog scale. Descriptive statistics were used to rank the outcomes. Subgroup analyses were performed using Mann-Whitney U or Kruskal-Wallis tests.

Results: Questionnaires of 4,518 hemodialysis patients were included in the analysis. The three most important outcomes were safety of treatment, health-related quality of life, and satisfaction with care. Further important outcomes were hospital stays, accompanying symptoms, hemodialysis duration, and the improvement or preservation of a good emotional state. Age, profession, and education had the strongest influence on relevant differences of preferences for outcomes; no relevant influence of sex or comorbidity was observed.

Conclusion: Outcomes concerning the delivery or provision of care and aspects influencing quality of life are rated by patients to be at least as important as clinical outcomes. Many of the outcomes judged to be important by the patients are not regularly considered in research, evaluation studies, or quality programs.

No MeSH data available.


Related in: MedlinePlus

Frequency of importance of outcomes.Abbreviations: GI, gastrointestinal; HRQoL, health-related quality of life.
© Copyright Policy
Related In: Results  -  Collection

License
getmorefigures.php?uid=PMC4492657&req=5

f1-ppa-9-847: Frequency of importance of outcomes.Abbreviations: GI, gastrointestinal; HRQoL, health-related quality of life.

Mentions: The percentages of patients ranking the outcomes as very important, somewhat important, and not important are presented in Figure 1. The outcomes safety, satisfaction, and health-related quality of life were rated as very important by more than 90% of patients. The ability to work was viewed as not important by more than 40% of patients and as very important only by approximately 30% of patients. The ability to choose nursing or medical staff was rated as very important by only around 50% of patients, and about 20% found these outcomes to be not important. The access to nursing staff was valued as very important by 90%, and less than 4% of patients regarded this outcome as not important to them. Detailed individual information was valued as very important by more than 85%, and as not important by less than 4%. Life expectancy was rated very important by nearly 80%, but more than 8% valued this outcome as not important.


Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients.

Janssen IM, Gerhardus A, von Gersdorff GD, Baldamus CA, Schaller M, Barth C, Scheibler F - Patient Prefer Adherence (2015)

Frequency of importance of outcomes.Abbreviations: GI, gastrointestinal; HRQoL, health-related quality of life.
© Copyright Policy
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC4492657&req=5

f1-ppa-9-847: Frequency of importance of outcomes.Abbreviations: GI, gastrointestinal; HRQoL, health-related quality of life.
Mentions: The percentages of patients ranking the outcomes as very important, somewhat important, and not important are presented in Figure 1. The outcomes safety, satisfaction, and health-related quality of life were rated as very important by more than 90% of patients. The ability to work was viewed as not important by more than 40% of patients and as very important only by approximately 30% of patients. The ability to choose nursing or medical staff was rated as very important by only around 50% of patients, and about 20% found these outcomes to be not important. The access to nursing staff was valued as very important by 90%, and less than 4% of patients regarded this outcome as not important to them. Detailed individual information was valued as very important by more than 85%, and as not important by less than 4%. Life expectancy was rated very important by nearly 80%, but more than 8% valued this outcome as not important.

Bottom Line: The three most important outcomes were safety of treatment, health-related quality of life, and satisfaction with care.Outcomes concerning the delivery or provision of care and aspects influencing quality of life are rated by patients to be at least as important as clinical outcomes.Many of the outcomes judged to be important by the patients are not regularly considered in research, evaluation studies, or quality programs.

View Article: PubMed Central - PubMed

Affiliation: Department of Epidemiology and International Public Health, Bielefeld University, Bielefeld, Germany.

ABSTRACT

Background: Chronic kidney disease is an increasing health problem worldwide and in its final stage (stage V) can only be treated by renal replacement therapy, mostly hemodialysis. Hemodialysis has a major influence on the everyday life of patients and many patients report dissatisfaction with treatment. Little is known about which aspects of treatment are considered important by hemodialysis patients. The objective of this study was to rate the relative importance of different outcomes for hemodialysis patients and to analyze whether the relative importance differed among subgroups of patients.

Patients and methods: Within the framework of a yearly questionnaire which is distributed among patients receiving hemodialysis by the largest hemodialysis provider in Germany, we assessed the relative importance of 23 outcomes as rated on a discrete visual analog scale. Descriptive statistics were used to rank the outcomes. Subgroup analyses were performed using Mann-Whitney U or Kruskal-Wallis tests.

Results: Questionnaires of 4,518 hemodialysis patients were included in the analysis. The three most important outcomes were safety of treatment, health-related quality of life, and satisfaction with care. Further important outcomes were hospital stays, accompanying symptoms, hemodialysis duration, and the improvement or preservation of a good emotional state. Age, profession, and education had the strongest influence on relevant differences of preferences for outcomes; no relevant influence of sex or comorbidity was observed.

Conclusion: Outcomes concerning the delivery or provision of care and aspects influencing quality of life are rated by patients to be at least as important as clinical outcomes. Many of the outcomes judged to be important by the patients are not regularly considered in research, evaluation studies, or quality programs.

No MeSH data available.


Related in: MedlinePlus