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PARADISE 24: A Measure to Assess the Impact of Brain Disorders on People's Lives.

Cieza A, Sabariego C, Anczewska M, Ballert C, Bickenbach J, Cabello M, Giovannetti A, Kaskela T, Mellor B, Pitkänen T, Quintas R, Raggi A, Świtaj P, Chatterji S, PARADISE Consorti - PLoS ONE (2015)

Bottom Line: Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise.The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92.Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs).

View Article: PubMed Central - PubMed

Affiliation: Faculty of Social and Human Sciences, School of Psychology, University of Southampton, Southampton, United Kingdom; Department of Medical Informatics, Biometry and Epidemiology (IBE), Chair for Public Health and Health Services Research, Research Unit for Biopsychosocial Health, Ludwig-Maximilians-University (LMU), Munich, Germany; Swiss Paraplegic Research, Nottwil, Switzerland.

ABSTRACT

Objective: To construct a metric of the impact of brain disorders on people's lives, based on the psychosocial difficulties (PSDs) that are experienced in common across brain disorders.

Study design: Psychometric study using data from a cross-sectional study with a convenience sample of 722 persons with 9 different brain disorders interviewed in four European countries: Italy, Poland, Spain and Finland. Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise. Rasch analyses for polytomous data were also applied.

Setting: In and outpatient settings.

Results: A valid and reliable metric with 24 items was created. The infit of all questions ranged between 0.7 and 1.3. There were no disordered thresholds. The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92. Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs).

Conclusion: The metric, called PARADISE 24, is based on the hypothesis of horizontal epidemiology, which affirms that people with brain disorders commonly experience PSDs. This metric is a useful tool to carry out cardinal comparisons over time of the magnitude of the psychosocial impact of brain disorders and between persons and groups in clinical practice and research.

No MeSH data available.


Related in: MedlinePlus

Distribution of persons’ abilities, items’ difficulties (bullets) and items’ thresholds (circles) on the latent scale.Legend: The upper part of the figure displays the distribution of personal abilities, while items’ locations and thresholds are displayed on the lines below. The items are presented according to their location in increasing order.
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pone.0132410.g001: Distribution of persons’ abilities, items’ difficulties (bullets) and items’ thresholds (circles) on the latent scale.Legend: The upper part of the figure displays the distribution of personal abilities, while items’ locations and thresholds are displayed on the lines below. The items are presented according to their location in increasing order.

Mentions: The targeting between item thresholds and persons’ abilities is shown in Fig 1. The targeting is good. The thresholds cover the whole continuum of PSDs with more threshold density in the higher levels of the continuum (towards a higher degree of difficulties). The person-separation index was 0.92, which indicates a high reliability and reproducibility of persons’ placements with the developed metric.


PARADISE 24: A Measure to Assess the Impact of Brain Disorders on People's Lives.

Cieza A, Sabariego C, Anczewska M, Ballert C, Bickenbach J, Cabello M, Giovannetti A, Kaskela T, Mellor B, Pitkänen T, Quintas R, Raggi A, Świtaj P, Chatterji S, PARADISE Consorti - PLoS ONE (2015)

Distribution of persons’ abilities, items’ difficulties (bullets) and items’ thresholds (circles) on the latent scale.Legend: The upper part of the figure displays the distribution of personal abilities, while items’ locations and thresholds are displayed on the lines below. The items are presented according to their location in increasing order.
© Copyright Policy
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC4492620&req=5

pone.0132410.g001: Distribution of persons’ abilities, items’ difficulties (bullets) and items’ thresholds (circles) on the latent scale.Legend: The upper part of the figure displays the distribution of personal abilities, while items’ locations and thresholds are displayed on the lines below. The items are presented according to their location in increasing order.
Mentions: The targeting between item thresholds and persons’ abilities is shown in Fig 1. The targeting is good. The thresholds cover the whole continuum of PSDs with more threshold density in the higher levels of the continuum (towards a higher degree of difficulties). The person-separation index was 0.92, which indicates a high reliability and reproducibility of persons’ placements with the developed metric.

Bottom Line: Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise.The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92.Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs).

View Article: PubMed Central - PubMed

Affiliation: Faculty of Social and Human Sciences, School of Psychology, University of Southampton, Southampton, United Kingdom; Department of Medical Informatics, Biometry and Epidemiology (IBE), Chair for Public Health and Health Services Research, Research Unit for Biopsychosocial Health, Ludwig-Maximilians-University (LMU), Munich, Germany; Swiss Paraplegic Research, Nottwil, Switzerland.

ABSTRACT

Objective: To construct a metric of the impact of brain disorders on people's lives, based on the psychosocial difficulties (PSDs) that are experienced in common across brain disorders.

Study design: Psychometric study using data from a cross-sectional study with a convenience sample of 722 persons with 9 different brain disorders interviewed in four European countries: Italy, Poland, Spain and Finland. Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise. Rasch analyses for polytomous data were also applied.

Setting: In and outpatient settings.

Results: A valid and reliable metric with 24 items was created. The infit of all questions ranged between 0.7 and 1.3. There were no disordered thresholds. The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92. Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs).

Conclusion: The metric, called PARADISE 24, is based on the hypothesis of horizontal epidemiology, which affirms that people with brain disorders commonly experience PSDs. This metric is a useful tool to carry out cardinal comparisons over time of the magnitude of the psychosocial impact of brain disorders and between persons and groups in clinical practice and research.

No MeSH data available.


Related in: MedlinePlus