Establishing a population-based patient-reported outcomes study (PROMs) using national cancer registries across two jurisdictions: the Prostate Cancer Treatment, your experience (PiCTure) study.
Bottom Line: In the multivariate analysis, significant predictors of eligibility were: being ≤59 years of age at diagnosis (p<0.001), short-term survivor (<5 years postdiagnosis; p<0.001) and from RoI (p<0.001). 3348 completed the questionnaire, yielding a 54% adjusted response rate. 13% of men or their families called the study freephone with queries for assistance with questionnaire completion or to talk about their experience.Weighted and unweighted mean EQ-5D-5L, QLQ-C30 and QLQ-PR25 scores were similar, as were the weighted and unweighted prevalences of depression, anxiety and distress.We highlight improvements which could inform future PROMs studies, including utilising general practitioners to assess eligibility and providing a freephone service.
Affiliation: National Cancer Registry Ireland, Cork, Ireland.Show MeSH
Related in: MedlinePlus
Mentions: Of the random sample of 12 322 prostate cancer survivors, just over half (53%; n=6559; figure 1) were classified as eligible, following the HCP screening. In multivariate analysis, men were significantly more likely to be deemed eligible if they were ≤59 years of age at diagnosis, short-term survivors and from RoI (table 1). Within each jurisdiction, a significant difference in the proportion of eligible survivors was observed by area of residence.