Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease.
Bottom Line: These impairments combined with the associated complex treatment mean that they are faced with specific and high levels of supportive care needs.Five key domains of supportive care needs were identified: informational or educational (eg, educational material, educational sessions), practical (eg, daily living), physical (eg, controlling pruritus and fatigue), patient care and support (eg, support groups), and psychological (eg, anxiety, sadness).While several key domains of supportive care needs were identified, most studies included hepatitis patients.
Affiliation: Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia School of Medicine, University of Queensland, Brisbane, Queensland, Australia.Show MeSH
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Mentions: The initial search yielded 2598 reports: 17 were relevant for our overview, 9 additional studies were found after reviewing the reference lists of relevant articles (figure 1; tables 1 and 2), with a total of 26 articles included in the review. Most studies included patients with hepatitis C (n=19), three included patients with cirrhosis, two with hepatitis B or C, and two included patients with hepatitis or CLD. Of studies including patients with hepatitis, in addition to the confirmation of diagnosis, in three studies participants had to be on combination therapy (interferon and ribavirin).21–23 Of the aforementioned studies, five included a mixed group of participants (not only patients). Jessop et al24 included members of hepatitis and/or liver support groups; these groups included not just patients with hepatitis, but families, friends and, in some cases, patients with other liver diseases. Rakoski et al12 included elderly people diagnosed with cirrhosis and an age-matched comparison group. Sgorbini et al23 and Bajaj et al25 included patients (hepatitis C and cirrhosis, respectively), and their partners or carers. Jennings26 included people who had abnormal laboratory tests and who were referred for further testing for diagnosis of hepatitis C. Rakoski et al12 was the only group reporting information separately for cases and controls.
Affiliation: Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia School of Medicine, University of Queensland, Brisbane, Queensland, Australia.