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Developing Governance for Federated Community-based EHR Data Sharing.

Lin CP, Stephens KA, Baldwin LM, Keppel GA, Whitener RJ, Echo-Hawk A, Korngiebel D - AMIA Jt Summits Transl Sci Proc (2014)

Bottom Line: The Data QUEST pilot project is a program supporting data sharing amongst community based primary care practices and is built on a technical infrastructure to share electronic health record data.We developed a set of governance requirements from interviewing and collaborating with partner organizations.Recommendations from our partner organizations included: 1) partner organizations can physically terminate the link to the data sharing network and only approved data exits the local site; 2) partner organizations must approve or reject each query; 3) partner organizations and researchers must respect local processes, resource restrictions, and infrastructures; and 4) partner organizations can be seamlessly added and removed from any individual data sharing query or the entire network.

View Article: PubMed Central - PubMed

Affiliation: Institute of Translational Health Sciences, University of Washington, Seattle, WA ; Global REACH, University of Michigan, Ann Arbor, MI.

ABSTRACT
Bi-directional translational pathways between scientific discoveries and primary care are crucial for improving individual patient care and population health. The Data QUEST pilot project is a program supporting data sharing amongst community based primary care practices and is built on a technical infrastructure to share electronic health record data. We developed a set of governance requirements from interviewing and collaborating with partner organizations. Recommendations from our partner organizations included: 1) partner organizations can physically terminate the link to the data sharing network and only approved data exits the local site; 2) partner organizations must approve or reject each query; 3) partner organizations and researchers must respect local processes, resource restrictions, and infrastructures; and 4) partner organizations can be seamlessly added and removed from any individual data sharing query or the entire network.

No MeSH data available.


Governance Requirement 1 (physically terminate the link to the network and only approved data leaves the firewall), and Governance Requirement 2 (approve or reject each query)
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f1-1855325: Governance Requirement 1 (physically terminate the link to the network and only approved data leaves the firewall), and Governance Requirement 2 (approve or reject each query)

Mentions: Figure 1 shows Data QUEST’s federated architecture. Organization A, Organization B, and Organization C are part of the Data QUEST network, and all the data reside locally at the organization (within the boundaries of the local firewall system) until they decide to share data with outside partners for a specific query or project. No centralized warehouse or database contains all of the data in the network. The “combined health data” are aggregated on a project-by-project basis.


Developing Governance for Federated Community-based EHR Data Sharing.

Lin CP, Stephens KA, Baldwin LM, Keppel GA, Whitener RJ, Echo-Hawk A, Korngiebel D - AMIA Jt Summits Transl Sci Proc (2014)

Governance Requirement 1 (physically terminate the link to the network and only approved data leaves the firewall), and Governance Requirement 2 (approve or reject each query)
© Copyright Policy
Related In: Results  -  Collection

Show All Figures
getmorefigures.php?uid=PMC4333692&req=5

f1-1855325: Governance Requirement 1 (physically terminate the link to the network and only approved data leaves the firewall), and Governance Requirement 2 (approve or reject each query)
Mentions: Figure 1 shows Data QUEST’s federated architecture. Organization A, Organization B, and Organization C are part of the Data QUEST network, and all the data reside locally at the organization (within the boundaries of the local firewall system) until they decide to share data with outside partners for a specific query or project. No centralized warehouse or database contains all of the data in the network. The “combined health data” are aggregated on a project-by-project basis.

Bottom Line: The Data QUEST pilot project is a program supporting data sharing amongst community based primary care practices and is built on a technical infrastructure to share electronic health record data.We developed a set of governance requirements from interviewing and collaborating with partner organizations.Recommendations from our partner organizations included: 1) partner organizations can physically terminate the link to the data sharing network and only approved data exits the local site; 2) partner organizations must approve or reject each query; 3) partner organizations and researchers must respect local processes, resource restrictions, and infrastructures; and 4) partner organizations can be seamlessly added and removed from any individual data sharing query or the entire network.

View Article: PubMed Central - PubMed

Affiliation: Institute of Translational Health Sciences, University of Washington, Seattle, WA ; Global REACH, University of Michigan, Ann Arbor, MI.

ABSTRACT
Bi-directional translational pathways between scientific discoveries and primary care are crucial for improving individual patient care and population health. The Data QUEST pilot project is a program supporting data sharing amongst community based primary care practices and is built on a technical infrastructure to share electronic health record data. We developed a set of governance requirements from interviewing and collaborating with partner organizations. Recommendations from our partner organizations included: 1) partner organizations can physically terminate the link to the data sharing network and only approved data exits the local site; 2) partner organizations must approve or reject each query; 3) partner organizations and researchers must respect local processes, resource restrictions, and infrastructures; and 4) partner organizations can be seamlessly added and removed from any individual data sharing query or the entire network.

No MeSH data available.