What should autism research focus upon? Community views and priorities from the United Kingdom.
Bottom Line: Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research.We also captured the views of a large number of stakeholders via an online survey.There was general consensus that future priorities for autism research should lie in those areas that make a difference to people's day-to-day lives.
Affiliation: Institute of Education, University of London, UK University of Western Australia, Australia firstname.lastname@example.org.Show MeSH
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Mentions: We identified one overarching theme from subsequent discussions on people’s priorities for future research. All stakeholders, especially autistic adults, parents and practitioners, prioritised research into issues of immediate practical concern. They wanted ‘to see real change and real things happening’ for themselves, their families and for the people they work with. This theme was divided into three sub-themes: (1) services and supports, (2) knowledge about autism and (3) research logistics (see Figure 2).
Affiliation: Institute of Education, University of London, UK University of Western Australia, Australia email@example.com.