What should autism research focus upon? Community views and priorities from the United Kingdom.
Bottom Line: Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research.We also captured the views of a large number of stakeholders via an online survey.There was general consensus that future priorities for autism research should lie in those areas that make a difference to people's day-to-day lives.
Affiliation: Institute of Education, University of London, UK University of Western Australia, Australia email@example.com.Show MeSH
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Mentions: The same cannot be said, however, for the current funding landscape in the UK. Analysis of 106 funding awards made between 2007 and 2011 showed that projects in the areas of biology, brain and cognition far outstripped all other areas of autism research – both in terms of number of awards made and money spent (Pellicano et al., 2013). More than half (56%) of the UK grant expenditure went towards such grants, totalling £11.6 million spread across 60 research projects (see Figure 1). Comparatively little research in the UK during this period was targeted towards identifying effective services for autistic people and their families (5% of funding), on diagnosis (5%) and interventions (18%) or on societal issues (1%). These figures suggest that research funding in the UK is much less evenly distributed across the different research areas than in the US.
Affiliation: Institute of Education, University of London, UK University of Western Australia, Australia firstname.lastname@example.org.