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The RaDIANT community study protocol: community-based participatory research for reducing disparities in access to kidney transplantation.

Patzer RE, Gander J, Sauls L, Amamoo MA, Krisher J, Mulloy LL, Gibney E, Browne T, Plantinga L, Pastan SO, Southeastern Kidney Transplant Coaliti - BMC Nephrol (2014)

Bottom Line: The Southeastern United States has the lowest kidney transplant rates in the nation, and racial disparities in kidney transplant access are concentrated in this region.The Southeastern Kidney Transplant Coalition (SEKTC) of Georgia, North Carolina, and South Carolina is an academic and community partnership that was formed with the mission to improve access to kidney transplantation and reduce disparities among African American (AA) end stage renal disease (ESRD) patients in the Southeastern United States.The primary outcome is change in facility-level referral for kidney transplantation from baseline to 12 months; the secondary outcome is reduction in racial disparity in transplant referral.

View Article: PubMed Central - PubMed

Affiliation: Department of Surgery, Division of Transplantation, Emory University School of Medicine, Atlanta, GA, USA. rpatzer@emory.edu.

ABSTRACT

Background: The Southeastern United States has the lowest kidney transplant rates in the nation, and racial disparities in kidney transplant access are concentrated in this region. The Southeastern Kidney Transplant Coalition (SEKTC) of Georgia, North Carolina, and South Carolina is an academic and community partnership that was formed with the mission to improve access to kidney transplantation and reduce disparities among African American (AA) end stage renal disease (ESRD) patients in the Southeastern United States.

Methods/design: We describe the community-based participatory research (CBPR) process utilized in planning the Reducing Disparities In Access to kidNey Transplantation (RaDIANT) Community Study, a trial developed by the SEKTC to reduce health disparities in access to kidney transplantation among AA ESRD patients in Georgia, the state with the lowest kidney transplant rates in the nation. The SEKTC Coalition conducted a needs assessment of the ESRD population in the Southeast and used results to develop a multicomponent, dialysis facility-randomized, quality improvement intervention to improve transplant access among dialysis facilities in GA. A total of 134 dialysis facilities are randomized to receive either: (1) standard of care or "usual" transplant education, or (2) the multicomponent intervention consisting of transplant education and engagement activities targeting dialysis facility leadership, staff, and patients within dialysis facilities. The primary outcome is change in facility-level referral for kidney transplantation from baseline to 12 months; the secondary outcome is reduction in racial disparity in transplant referral.

Discussion: The RaDIANT Community Study aims to improve equity in access to kidney transplantation for ESRD patients in the Southeast.

Trial registration: Clinicaltrials.gov number NCT02092727.

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Related in: MedlinePlus

Description of patient-, staff-, and facility-level interventions for RaDIANT community study.
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Fig2: Description of patient-, staff-, and facility-level interventions for RaDIANT community study.

Mentions: Intervention activities are designed to target and span multiple levels, including patient, facility staff, and facility protocol levels (Figure 2). For example, there are several interventions that target facility policies and protocols, including the requirement that facilities create their own transplant referral quality improvement plan by journaling their goals, obstacles, and successes; working with the ESRD Network on quality improvement assistance and review; creating a patient and family advisory group; conducting a transplant education month; hosting a movie night including culturally sensitive information about living donation; and establishing a peer mentoring program to help facilitate transplant recipients to speak to potential transplant candidates. In addition, facilities must report their monthly referrals to ESRD Network 6 and are given a baseline and mid-year report on their own facility’s performance related to transplant referral. Facility staff are recommended to attend their own facility’s kick off quality improvement session on improving transplant referrals, attend monthly educational webinars developed by SEKTC members, attend a transplant educational seminar or session across the state (including “Trends in Transplant” hosted by the Georgia Transplant Foundation, or Explore Transplant), and complete an online patient safety module. Educational activities targeting patients within facilities include bulletin boards that facility staff must set up to educate patients about transplantation, the opportunity to participate in the patient and family advisory group for transplantation, and the receipt of a patient educational “toolkit” about transplantation. The major intervention activities are described in more detail below.Figure 2


The RaDIANT community study protocol: community-based participatory research for reducing disparities in access to kidney transplantation.

Patzer RE, Gander J, Sauls L, Amamoo MA, Krisher J, Mulloy LL, Gibney E, Browne T, Plantinga L, Pastan SO, Southeastern Kidney Transplant Coaliti - BMC Nephrol (2014)

Description of patient-, staff-, and facility-level interventions for RaDIANT community study.
© Copyright Policy - open-access
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC4230631&req=5

Fig2: Description of patient-, staff-, and facility-level interventions for RaDIANT community study.
Mentions: Intervention activities are designed to target and span multiple levels, including patient, facility staff, and facility protocol levels (Figure 2). For example, there are several interventions that target facility policies and protocols, including the requirement that facilities create their own transplant referral quality improvement plan by journaling their goals, obstacles, and successes; working with the ESRD Network on quality improvement assistance and review; creating a patient and family advisory group; conducting a transplant education month; hosting a movie night including culturally sensitive information about living donation; and establishing a peer mentoring program to help facilitate transplant recipients to speak to potential transplant candidates. In addition, facilities must report their monthly referrals to ESRD Network 6 and are given a baseline and mid-year report on their own facility’s performance related to transplant referral. Facility staff are recommended to attend their own facility’s kick off quality improvement session on improving transplant referrals, attend monthly educational webinars developed by SEKTC members, attend a transplant educational seminar or session across the state (including “Trends in Transplant” hosted by the Georgia Transplant Foundation, or Explore Transplant), and complete an online patient safety module. Educational activities targeting patients within facilities include bulletin boards that facility staff must set up to educate patients about transplantation, the opportunity to participate in the patient and family advisory group for transplantation, and the receipt of a patient educational “toolkit” about transplantation. The major intervention activities are described in more detail below.Figure 2

Bottom Line: The Southeastern United States has the lowest kidney transplant rates in the nation, and racial disparities in kidney transplant access are concentrated in this region.The Southeastern Kidney Transplant Coalition (SEKTC) of Georgia, North Carolina, and South Carolina is an academic and community partnership that was formed with the mission to improve access to kidney transplantation and reduce disparities among African American (AA) end stage renal disease (ESRD) patients in the Southeastern United States.The primary outcome is change in facility-level referral for kidney transplantation from baseline to 12 months; the secondary outcome is reduction in racial disparity in transplant referral.

View Article: PubMed Central - PubMed

Affiliation: Department of Surgery, Division of Transplantation, Emory University School of Medicine, Atlanta, GA, USA. rpatzer@emory.edu.

ABSTRACT

Background: The Southeastern United States has the lowest kidney transplant rates in the nation, and racial disparities in kidney transplant access are concentrated in this region. The Southeastern Kidney Transplant Coalition (SEKTC) of Georgia, North Carolina, and South Carolina is an academic and community partnership that was formed with the mission to improve access to kidney transplantation and reduce disparities among African American (AA) end stage renal disease (ESRD) patients in the Southeastern United States.

Methods/design: We describe the community-based participatory research (CBPR) process utilized in planning the Reducing Disparities In Access to kidNey Transplantation (RaDIANT) Community Study, a trial developed by the SEKTC to reduce health disparities in access to kidney transplantation among AA ESRD patients in Georgia, the state with the lowest kidney transplant rates in the nation. The SEKTC Coalition conducted a needs assessment of the ESRD population in the Southeast and used results to develop a multicomponent, dialysis facility-randomized, quality improvement intervention to improve transplant access among dialysis facilities in GA. A total of 134 dialysis facilities are randomized to receive either: (1) standard of care or "usual" transplant education, or (2) the multicomponent intervention consisting of transplant education and engagement activities targeting dialysis facility leadership, staff, and patients within dialysis facilities. The primary outcome is change in facility-level referral for kidney transplantation from baseline to 12 months; the secondary outcome is reduction in racial disparity in transplant referral.

Discussion: The RaDIANT Community Study aims to improve equity in access to kidney transplantation for ESRD patients in the Southeast.

Trial registration: Clinicaltrials.gov number NCT02092727.

Show MeSH
Related in: MedlinePlus