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"Sometimes It's Difficult to Have a Normal Life": Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia.

Gater A, Rofail D, Tolley C, Marshall C, Abetz-Webb L, Zarit SH, Berardo CG - Schizophr Res Treatment (2014)

Bottom Line: Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety).Conclusions.Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs.

View Article: PubMed Central - PubMed

Affiliation: Adelphi Mill, Grimshaw Lane, Bollington, Cheshire SK10 5JB, UK.

ABSTRACT
Objectives. As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers' lives. This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding "caregiver burden" in this population. Methods. Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill). Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers' experiences. Results. Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work). Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety). Conclusions. Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs. Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.

No MeSH data available.


Related in: MedlinePlus

Preliminary conceptual model of caregiver experiences of providing care for a person with schizophrenia. Note: numbers refer to the number of caregivers who discussed each concept and for whom this concept was relevant. This preliminary conceptual model does not seek to convey the strength, direction, or nature of relationships between concepts and domains. This is to be the subject of future research.
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Related In: Results  -  Collection


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fig4: Preliminary conceptual model of caregiver experiences of providing care for a person with schizophrenia. Note: numbers refer to the number of caregivers who discussed each concept and for whom this concept was relevant. This preliminary conceptual model does not seek to convey the strength, direction, or nature of relationships between concepts and domains. This is to be the subject of future research.

Mentions: Based on feedback from caregivers, a preliminary conceptual model was developed to outline and visualize the experiences of caregivers of people with schizophrenia, see Figure 4.


"Sometimes It's Difficult to Have a Normal Life": Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia.

Gater A, Rofail D, Tolley C, Marshall C, Abetz-Webb L, Zarit SH, Berardo CG - Schizophr Res Treatment (2014)

Preliminary conceptual model of caregiver experiences of providing care for a person with schizophrenia. Note: numbers refer to the number of caregivers who discussed each concept and for whom this concept was relevant. This preliminary conceptual model does not seek to convey the strength, direction, or nature of relationships between concepts and domains. This is to be the subject of future research.
© Copyright Policy - open-access
Related In: Results  -  Collection

Show All Figures
getmorefigures.php?uid=PMC4016854&req=5

fig4: Preliminary conceptual model of caregiver experiences of providing care for a person with schizophrenia. Note: numbers refer to the number of caregivers who discussed each concept and for whom this concept was relevant. This preliminary conceptual model does not seek to convey the strength, direction, or nature of relationships between concepts and domains. This is to be the subject of future research.
Mentions: Based on feedback from caregivers, a preliminary conceptual model was developed to outline and visualize the experiences of caregivers of people with schizophrenia, see Figure 4.

Bottom Line: Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety).Conclusions.Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs.

View Article: PubMed Central - PubMed

Affiliation: Adelphi Mill, Grimshaw Lane, Bollington, Cheshire SK10 5JB, UK.

ABSTRACT
Objectives. As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers' lives. This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding "caregiver burden" in this population. Methods. Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill). Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers' experiences. Results. Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work). Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety). Conclusions. Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs. Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.

No MeSH data available.


Related in: MedlinePlus