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Opinion of patients with ankylosing spondylitis on risk factors impairing their quality of life.

Kucharz EJ, Kotulska A, Kopeć-Mędrek M, Widuchowska M - Rheumatol. Int. (2012)

Bottom Line: We have show that pain and significant disability are the main threats associated with the disease in view of the patients.Social aspects (losing of job or decreasing of income) are also important for the patients, while management of the disease is not considered as arduous.The results of patients' opinion may be helpful in designing of educational programs for them.

View Article: PubMed Central - PubMed

Affiliation: Department of Internal Medicine and Rheumatology, Medical University of Silesia, Katowice, Poland.

ABSTRACT
We studied 54 patients with ankylosing spondylitis with questionnaire in order to determine their view on threat to quality of their life related to the disease. We have show that pain and significant disability are the main threats associated with the disease in view of the patients. Social aspects (losing of job or decreasing of income) are also important for the patients, while management of the disease is not considered as arduous. The results of patients' opinion may be helpful in designing of educational programs for them.

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As patients’ option on importance of various factors potentially affecting their quality of life
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Fig1: As patients’ option on importance of various factors potentially affecting their quality of life

Mentions: Results are presented in Fig. 1. Pain is the main thread to the patients, and almost two-thirds of them consider pain as a very important risk factor to their quality of life. Problems in family life are also highly rated. More than a half of the patients were found to feel endangered by risk of needing help of another person for everyday functioning. It suggests that family life and help to a sick family member are closely associated, especially that there is a small tradition to use an institutional assistance for chronic patients in Poland. In most cases family feels responsible for help to a chronically disabled member. Social situation is also considered as endangered by AS. The mean score for losing a job or decreasing of income due to AS is 3.0 (important) and for almost a half of the investigated patients is very important. It may be associated with the fact that AS affects mostly young men that are in age of forming their own families.Fig. 1


Opinion of patients with ankylosing spondylitis on risk factors impairing their quality of life.

Kucharz EJ, Kotulska A, Kopeć-Mędrek M, Widuchowska M - Rheumatol. Int. (2012)

As patients’ option on importance of various factors potentially affecting their quality of life
© Copyright Policy
Related In: Results  -  Collection

Show All Figures
getmorefigures.php?uid=PMC3824196&req=5

Fig1: As patients’ option on importance of various factors potentially affecting their quality of life
Mentions: Results are presented in Fig. 1. Pain is the main thread to the patients, and almost two-thirds of them consider pain as a very important risk factor to their quality of life. Problems in family life are also highly rated. More than a half of the patients were found to feel endangered by risk of needing help of another person for everyday functioning. It suggests that family life and help to a sick family member are closely associated, especially that there is a small tradition to use an institutional assistance for chronic patients in Poland. In most cases family feels responsible for help to a chronically disabled member. Social situation is also considered as endangered by AS. The mean score for losing a job or decreasing of income due to AS is 3.0 (important) and for almost a half of the investigated patients is very important. It may be associated with the fact that AS affects mostly young men that are in age of forming their own families.Fig. 1

Bottom Line: We have show that pain and significant disability are the main threats associated with the disease in view of the patients.Social aspects (losing of job or decreasing of income) are also important for the patients, while management of the disease is not considered as arduous.The results of patients' opinion may be helpful in designing of educational programs for them.

View Article: PubMed Central - PubMed

Affiliation: Department of Internal Medicine and Rheumatology, Medical University of Silesia, Katowice, Poland.

ABSTRACT
We studied 54 patients with ankylosing spondylitis with questionnaire in order to determine their view on threat to quality of their life related to the disease. We have show that pain and significant disability are the main threats associated with the disease in view of the patients. Social aspects (losing of job or decreasing of income) are also important for the patients, while management of the disease is not considered as arduous. The results of patients' opinion may be helpful in designing of educational programs for them.

Show MeSH
Related in: MedlinePlus