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Evaluation of a prototype tool for communicating body perception disturbances in complex regional pain syndrome.

Turton AJ, Palmer M, Grieve S, Moss TP, Lewis J, McCabe CS - Front Hum Neurosci (2013)

Bottom Line: All reported the tool acceptable for communicating their body perception.Participants described the positive impact of now seeing an image they had previously only imagined and could now convey to others.The application has provided a novel way for communicating perceptions that are otherwise difficult to convey.

View Article: PubMed Central - PubMed

Affiliation: Faculty of Health and Life Sciences, University of the West of England , Bristol , UK.

ABSTRACT
Patients with Complex Regional Pain Syndrome (CRPS) experience distressing changes in body perception. However representing body perception is a challenge. A digital media tool for communicating body perception disturbances was developed. A proof of concept study evaluating the acceptability of the application for patients to communicate their body perception is reported in this methods paper. Thirteen CRPS participants admitted to a 2-week inpatient rehabilitation program used the application in a consultation with a research nurse. Audio recordings were made of the process and a structured questionnaire was administered to capture experiences of using the tool. Participants produced powerful images of disturbances in their body perception. All reported the tool acceptable for communicating their body perception. Participants described the positive impact of now seeing an image they had previously only imagined and could now convey to others. The application has provided a novel way for communicating perceptions that are otherwise difficult to convey.

No MeSH data available.


Related in: MedlinePlus

Image produced after additional features were added to the application: particle texture effects and fractionation of digits.
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Figure 4: Image produced after additional features were added to the application: particle texture effects and fractionation of digits.

Mentions: Main limitations of the prototype identified by the first 10 participants were the lack of detailed representation of the hands and the lack of ability to represent more than one sensation in a single body or limb segment. Program modifications allowing finer manipulation of individual fingers and additional surface options to portray conflicting temperatures and shooting sensations were made and version 2 was tested on the three last participants. All three used the refinements to fractionate the hand and the additional textures and found them to be acceptable features (for an example see Figure 4).


Evaluation of a prototype tool for communicating body perception disturbances in complex regional pain syndrome.

Turton AJ, Palmer M, Grieve S, Moss TP, Lewis J, McCabe CS - Front Hum Neurosci (2013)

Image produced after additional features were added to the application: particle texture effects and fractionation of digits.
© Copyright Policy - open-access
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC3755264&req=5

Figure 4: Image produced after additional features were added to the application: particle texture effects and fractionation of digits.
Mentions: Main limitations of the prototype identified by the first 10 participants were the lack of detailed representation of the hands and the lack of ability to represent more than one sensation in a single body or limb segment. Program modifications allowing finer manipulation of individual fingers and additional surface options to portray conflicting temperatures and shooting sensations were made and version 2 was tested on the three last participants. All three used the refinements to fractionate the hand and the additional textures and found them to be acceptable features (for an example see Figure 4).

Bottom Line: All reported the tool acceptable for communicating their body perception.Participants described the positive impact of now seeing an image they had previously only imagined and could now convey to others.The application has provided a novel way for communicating perceptions that are otherwise difficult to convey.

View Article: PubMed Central - PubMed

Affiliation: Faculty of Health and Life Sciences, University of the West of England , Bristol , UK.

ABSTRACT
Patients with Complex Regional Pain Syndrome (CRPS) experience distressing changes in body perception. However representing body perception is a challenge. A digital media tool for communicating body perception disturbances was developed. A proof of concept study evaluating the acceptability of the application for patients to communicate their body perception is reported in this methods paper. Thirteen CRPS participants admitted to a 2-week inpatient rehabilitation program used the application in a consultation with a research nurse. Audio recordings were made of the process and a structured questionnaire was administered to capture experiences of using the tool. Participants produced powerful images of disturbances in their body perception. All reported the tool acceptable for communicating their body perception. Participants described the positive impact of now seeing an image they had previously only imagined and could now convey to others. The application has provided a novel way for communicating perceptions that are otherwise difficult to convey.

No MeSH data available.


Related in: MedlinePlus