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Validation of an informant-reported web-based data collection to assess dementia symptoms.

Rockwood K, Zeng A, Leibman C, Mucha L, Mitnitski A - J. Med. Internet Res. (2012)

Bottom Line: In the 250 profilees (155, 62% women, mean age 77 years), increasing dependence was associated with a greater chance of institutionalization.For example, no one at the lowest levels of dependence (DS score < 5, n = 33) was in long-term care, compared with half (13/25) of the profilees at the highest levels of dependence (DS score > 12) being in institutions (χ(2)(4) = 27.9, P < .001).Even so, caution is needed to assure the validity of data collected online.

View Article: PubMed Central - HTML - PubMed

Affiliation: DGI Clinical Inc, Halifax, NS, Canada. KRockwood@dgiclinical.com

ABSTRACT

Background: The Web offers unprecedented access to the experience of people with dementia and their care partners, but data gathered online need to be validated to be useful.

Objective: To test the construct validity of an informant Web-based data collection to assess dementia symptoms in relation to the 15-point Dependence Scale (DS).

Methods: In an online survey posted on the DementiaGuide website, care partners of people with dementia built individualized profiles from the 60-item SymptomGuide and completed a questionnaire, which included the DS and a staging tool.

Results: In the 250 profilees (155, 62% women, mean age 77 years), increasing dependence was associated with a greater chance of institutionalization. For example, no one at the lowest levels of dependence (DS score < 5, n = 33) was in long-term care, compared with half (13/25) of the profilees at the highest levels of dependence (DS score > 12) being in institutions (χ(2)(4) = 27.9, P < .001). The Web-based DS was correlated with the number of symptoms: higher DS scores were associated with a higher stage of dementia (F > 50, P < .001).

Conclusion: In an online survey, the Web-based DS showed good construct validity, potentially demonstrating how the Web can be used to learn more about dementia progression and how it relates to symptoms experienced by patients across the course of dementing illnesses. Even so, caution is needed to assure the validity of data collected online.

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Related in: MedlinePlus

Dependence Scale score by grade of severity as a box-and-whiskers plot. The boxes show medians (red lines), edges at the quartiles Q1 and Q3; the whiskers show the boundary for the outliers.
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figure3: Dependence Scale score by grade of severity as a box-and-whiskers plot. The boxes show medians (red lines), edges at the quartiles Q1 and Q3; the whiskers show the boundary for the outliers.

Mentions: The DS score also increased as the user-based severity staging score increased (r = .85, P < .001; Figure 3). ANOVA confirmed a significant difference in the association of the DS score by severity groups (F4 = 148, P < .001; Figure 3).


Validation of an informant-reported web-based data collection to assess dementia symptoms.

Rockwood K, Zeng A, Leibman C, Mucha L, Mitnitski A - J. Med. Internet Res. (2012)

Dependence Scale score by grade of severity as a box-and-whiskers plot. The boxes show medians (red lines), edges at the quartiles Q1 and Q3; the whiskers show the boundary for the outliers.
© Copyright Policy - open-access
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC3376520&req=5

figure3: Dependence Scale score by grade of severity as a box-and-whiskers plot. The boxes show medians (red lines), edges at the quartiles Q1 and Q3; the whiskers show the boundary for the outliers.
Mentions: The DS score also increased as the user-based severity staging score increased (r = .85, P < .001; Figure 3). ANOVA confirmed a significant difference in the association of the DS score by severity groups (F4 = 148, P < .001; Figure 3).

Bottom Line: In the 250 profilees (155, 62% women, mean age 77 years), increasing dependence was associated with a greater chance of institutionalization.For example, no one at the lowest levels of dependence (DS score < 5, n = 33) was in long-term care, compared with half (13/25) of the profilees at the highest levels of dependence (DS score > 12) being in institutions (χ(2)(4) = 27.9, P < .001).Even so, caution is needed to assure the validity of data collected online.

View Article: PubMed Central - HTML - PubMed

Affiliation: DGI Clinical Inc, Halifax, NS, Canada. KRockwood@dgiclinical.com

ABSTRACT

Background: The Web offers unprecedented access to the experience of people with dementia and their care partners, but data gathered online need to be validated to be useful.

Objective: To test the construct validity of an informant Web-based data collection to assess dementia symptoms in relation to the 15-point Dependence Scale (DS).

Methods: In an online survey posted on the DementiaGuide website, care partners of people with dementia built individualized profiles from the 60-item SymptomGuide and completed a questionnaire, which included the DS and a staging tool.

Results: In the 250 profilees (155, 62% women, mean age 77 years), increasing dependence was associated with a greater chance of institutionalization. For example, no one at the lowest levels of dependence (DS score < 5, n = 33) was in long-term care, compared with half (13/25) of the profilees at the highest levels of dependence (DS score > 12) being in institutions (χ(2)(4) = 27.9, P < .001). The Web-based DS was correlated with the number of symptoms: higher DS scores were associated with a higher stage of dementia (F > 50, P < .001).

Conclusion: In an online survey, the Web-based DS showed good construct validity, potentially demonstrating how the Web can be used to learn more about dementia progression and how it relates to symptoms experienced by patients across the course of dementing illnesses. Even so, caution is needed to assure the validity of data collected online.

Show MeSH
Related in: MedlinePlus