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A conceptual framework and principles for trusted pervasive health.

Ruotsalainen PS, Blobel BG, Seppälä AV, Sorvari HO, Nykänen PA - J. Med. Internet Res. (2012)

Bottom Line: To be successful, pervasive health requires implementable principles for privacy and trustworthiness.The implementation of principles requires new infrastructural services such as trust verification and policy conflict resolution.After implementation, the accuracy and usability of principles should be analyzed.

View Article: PubMed Central - HTML - PubMed

Affiliation: National Instutute for Health and Welfare, Department of Information, Helsinki, Finland. pekka.ruotsalainen@thl.fi

ABSTRACT

Background: Ubiquitous computing technology, sensor networks, wireless communication and the latest developments of the Internet have enabled the rise of a new concept-pervasive health-which takes place in an open, unsecure, and highly dynamic environment (ie, in the information space). To be successful, pervasive health requires implementable principles for privacy and trustworthiness.

Objective: This research has two interconnected objectives. The first is to define pervasive health as a system and to understand its trust and privacy challenges. The second goal is to build a conceptual model for pervasive health and use it to develop principles and policies which can make pervasive health trustworthy.

Methods: In this study, a five-step system analysis method is used. Pervasive health is defined using a metaphor of digital bubbles. A conceptual framework model focused on trustworthiness and privacy is then developed for pervasive health. On that model, principles and rules for trusted information management in pervasive health are defined.

Results: In the first phase of this study, a new definition of pervasive health was created. Using this model, differences between pervasive health and health care are stated. Reviewed publications demonstrate that the widely used principles of predefined and static trust cannot guarantee trustworthiness and privacy in pervasive health. Instead, such an environment requires personal dynamic and context-aware policies, awareness, and transparency. A conceptual framework model focused on information processing in pervasive health is developed. Using features of pervasive health and relations from the framework model, new principles for trusted pervasive health have been developed. The principles propose that personal health data should be under control of the data subject. The person shall have the right to verify the level of trust of any system which collects or processes his or her health information. Principles require that any stakeholder or system collecting or processing health data must support transparency and shall publish its trust and privacy attributes and even its domain specific policies.

Conclusions: The developed principles enable trustworthiness and guarantee privacy in pervasive health. The implementation of principles requires new infrastructural services such as trust verification and policy conflict resolution. After implementation, the accuracy and usability of principles should be analyzed.

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Pervasive health in the information space.
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Related In: Results  -  Collection

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figure1: Pervasive health in the information space.

Mentions: Figure 1 displays the developed graphical model for pervasive health. In this model, the information space is an open and dynamic environment, which is characterized by the use of ubiquitous computing and by relations between bubbles. Its bubbles can be dynamically linked together, and information collecting and processing is poorly regulated (eg, privacy rules in bubbles are often unknown). In the case where a bubble includes many systems, they can have different business objectives, but they should have the same privacy regulations and rules.


A conceptual framework and principles for trusted pervasive health.

Ruotsalainen PS, Blobel BG, Seppälä AV, Sorvari HO, Nykänen PA - J. Med. Internet Res. (2012)

Pervasive health in the information space.
© Copyright Policy - open-access
Related In: Results  -  Collection

License 1 - License 2
Show All Figures
getmorefigures.php?uid=PMC3376512&req=5

figure1: Pervasive health in the information space.
Mentions: Figure 1 displays the developed graphical model for pervasive health. In this model, the information space is an open and dynamic environment, which is characterized by the use of ubiquitous computing and by relations between bubbles. Its bubbles can be dynamically linked together, and information collecting and processing is poorly regulated (eg, privacy rules in bubbles are often unknown). In the case where a bubble includes many systems, they can have different business objectives, but they should have the same privacy regulations and rules.

Bottom Line: To be successful, pervasive health requires implementable principles for privacy and trustworthiness.The implementation of principles requires new infrastructural services such as trust verification and policy conflict resolution.After implementation, the accuracy and usability of principles should be analyzed.

View Article: PubMed Central - HTML - PubMed

Affiliation: National Instutute for Health and Welfare, Department of Information, Helsinki, Finland. pekka.ruotsalainen@thl.fi

ABSTRACT

Background: Ubiquitous computing technology, sensor networks, wireless communication and the latest developments of the Internet have enabled the rise of a new concept-pervasive health-which takes place in an open, unsecure, and highly dynamic environment (ie, in the information space). To be successful, pervasive health requires implementable principles for privacy and trustworthiness.

Objective: This research has two interconnected objectives. The first is to define pervasive health as a system and to understand its trust and privacy challenges. The second goal is to build a conceptual model for pervasive health and use it to develop principles and policies which can make pervasive health trustworthy.

Methods: In this study, a five-step system analysis method is used. Pervasive health is defined using a metaphor of digital bubbles. A conceptual framework model focused on trustworthiness and privacy is then developed for pervasive health. On that model, principles and rules for trusted information management in pervasive health are defined.

Results: In the first phase of this study, a new definition of pervasive health was created. Using this model, differences between pervasive health and health care are stated. Reviewed publications demonstrate that the widely used principles of predefined and static trust cannot guarantee trustworthiness and privacy in pervasive health. Instead, such an environment requires personal dynamic and context-aware policies, awareness, and transparency. A conceptual framework model focused on information processing in pervasive health is developed. Using features of pervasive health and relations from the framework model, new principles for trusted pervasive health have been developed. The principles propose that personal health data should be under control of the data subject. The person shall have the right to verify the level of trust of any system which collects or processes his or her health information. Principles require that any stakeholder or system collecting or processing health data must support transparency and shall publish its trust and privacy attributes and even its domain specific policies.

Conclusions: The developed principles enable trustworthiness and guarantee privacy in pervasive health. The implementation of principles requires new infrastructural services such as trust verification and policy conflict resolution. After implementation, the accuracy and usability of principles should be analyzed.

Show MeSH