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Consumer input into research: the Australian Cancer Trials website.

Dear RF, Barratt AL, Crossing S, Butow PN, Hanson S, Tattersall MH - Health Res Policy Syst (2011)

Bottom Line: Consumers, led by Cancer Voices NSW, provided the impetus to develop the website.ACTO's main features and content reflect consumer input.ACTO serves as a model for other health conditions.

View Article: PubMed Central - HTML - PubMed

Affiliation: Sydney Medical School, Room 391, Blackburn Building, D06, The University of Sydney NSW 2006, Australia. rachel.dear@sydney.edu.au.

ABSTRACT

Background: The Australian Cancer Trials website (ACTO) was publicly launched in 2010 to help people search for cancer clinical trials recruiting in Australia, provide information about clinical trials and assist with doctor-patient communication about trials. We describe consumer involvement in the design and development of ACTO and report our preliminary patient evaluation of the website.

Methods: Consumers, led by Cancer Voices NSW, provided the impetus to develop the website. Consumer representative groups were consulted by the research team during the design and development of ACTO which combines a search engine, trial details, general information about trial participation and question prompt lists. Website use was analysed. A patient evaluation questionnaire was completed at one hospital, one week after exposure to the website.

Results: ACTO's main features and content reflect consumer input. In February 2011, it covered 1, 042 cancer trials. Since ACTO's public launch in November 2010, until the end of February 2011, the website has had 2, 549 new visits and generated 17, 833 page views. In a sub-study of 47 patient users, 89% found the website helpful for learning about clinical trials and all respondents thought patients should have access to ACTO.

Conclusions: The development of ACTO is an example of consumers working with doctors, researchers and policy makers to improve the information available to people whose lives are affected by cancer and to help them participate in their treatment decisions, including consideration of clinical trial enrolment. Consumer input has ensured that the website is informative, targets consumer priorities and is user-friendly. ACTO serves as a model for other health conditions.

No MeSH data available.


Related in: MedlinePlus

Home page of the Australian Cancer Trials website. 1. Search function, 2. Information about each clinical trial (displayed after searching for and then selecting a trial), 3. Supporting information about clinical trial participation "About Clinical Trials", 4. Question prompt lists.
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Related In: Results  -  Collection

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Figure 1: Home page of the Australian Cancer Trials website. 1. Search function, 2. Information about each clinical trial (displayed after searching for and then selecting a trial), 3. Supporting information about clinical trial participation "About Clinical Trials", 4. Question prompt lists.

Mentions: Figure 1 is a screen shot showing the main features of the ACTO home page. These features include 1) A search function; 2) Information about each clinical trial; 3) Supporting information about clinical trial participation; and 4) QPLs.


Consumer input into research: the Australian Cancer Trials website.

Dear RF, Barratt AL, Crossing S, Butow PN, Hanson S, Tattersall MH - Health Res Policy Syst (2011)

Home page of the Australian Cancer Trials website. 1. Search function, 2. Information about each clinical trial (displayed after searching for and then selecting a trial), 3. Supporting information about clinical trial participation "About Clinical Trials", 4. Question prompt lists.
© Copyright Policy - open-access
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC3141790&req=5

Figure 1: Home page of the Australian Cancer Trials website. 1. Search function, 2. Information about each clinical trial (displayed after searching for and then selecting a trial), 3. Supporting information about clinical trial participation "About Clinical Trials", 4. Question prompt lists.
Mentions: Figure 1 is a screen shot showing the main features of the ACTO home page. These features include 1) A search function; 2) Information about each clinical trial; 3) Supporting information about clinical trial participation; and 4) QPLs.

Bottom Line: Consumers, led by Cancer Voices NSW, provided the impetus to develop the website.ACTO's main features and content reflect consumer input.ACTO serves as a model for other health conditions.

View Article: PubMed Central - HTML - PubMed

Affiliation: Sydney Medical School, Room 391, Blackburn Building, D06, The University of Sydney NSW 2006, Australia. rachel.dear@sydney.edu.au.

ABSTRACT

Background: The Australian Cancer Trials website (ACTO) was publicly launched in 2010 to help people search for cancer clinical trials recruiting in Australia, provide information about clinical trials and assist with doctor-patient communication about trials. We describe consumer involvement in the design and development of ACTO and report our preliminary patient evaluation of the website.

Methods: Consumers, led by Cancer Voices NSW, provided the impetus to develop the website. Consumer representative groups were consulted by the research team during the design and development of ACTO which combines a search engine, trial details, general information about trial participation and question prompt lists. Website use was analysed. A patient evaluation questionnaire was completed at one hospital, one week after exposure to the website.

Results: ACTO's main features and content reflect consumer input. In February 2011, it covered 1, 042 cancer trials. Since ACTO's public launch in November 2010, until the end of February 2011, the website has had 2, 549 new visits and generated 17, 833 page views. In a sub-study of 47 patient users, 89% found the website helpful for learning about clinical trials and all respondents thought patients should have access to ACTO.

Conclusions: The development of ACTO is an example of consumers working with doctors, researchers and policy makers to improve the information available to people whose lives are affected by cancer and to help them participate in their treatment decisions, including consideration of clinical trial enrolment. Consumer input has ensured that the website is informative, targets consumer priorities and is user-friendly. ACTO serves as a model for other health conditions.

No MeSH data available.


Related in: MedlinePlus