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Shared communication processes within healthcare teams for rare diseases and their influence on healthcare professionals' innovative behavior and patient satisfaction.

Hannemann-Weber H, Kessel M, Budych K, Schultz C - Implement Sci (2011)

Bottom Line: The results are related back to theory, and testable hypotheses will be derived.Therefore, this study will pinpoint the primary interaction and communication processes in multidisciplinary teams, as well as the required interplay between exploratory outcomes and operational performance.Hence, this study will provide healthcare institutions and HCPs with results and information essential for elaborating and implementing individual care solutions through the establishment of appropriate interaction and communication structures and processes within patient-centered healthcare teams.

View Article: PubMed Central - HTML - PubMed

Affiliation: Institute for Technology and Innovation Management, Technische Universit├Ąt Berlin, Strasse des 17, Juni 135, 10623 Berlin, Germany. henrike.hannemann-weber@tu-berlin.de

ABSTRACT

Background: A rare disease is a pattern of symptoms that afflicts less than five in 10,000 patients. However, as about 6,000 different rare disease patterns exist, they still have significant epidemiological relevance. We focus on rare diseases that affect multiple organs and thus demand that multidisciplinary healthcare professionals (HCPs) work together. In this context, standardized healthcare processes and concepts are mainly lacking, and a deficit of knowledge induces uncertainty and ambiguity. As such, individualized solutions for each patient are needed. This necessitates an intensive level of innovative individual behavior and thus, adequate idea generation. The final implementation of new healthcare concepts requires the integration of the expertise of all healthcare team members, including that of the patients. Therefore, knowledge sharing between HCPs and shared decision making between HCPs and patients are important. The objective of this study is to assess the contribution of shared communication and decision-making processes in patient-centered healthcare teams to the generation of innovative concepts and consequently to improvements in patient satisfaction.

Methods: A theoretical framework covering interaction processes and explorative outcomes, and using patient satisfaction as a measure for operational performance, was developed based on healthcare management, innovation, and social science literature. This theoretical framework forms the basis for a three-phase, mixed-method study. Exploratory phase I will first involve collecting qualitative data to detect central interaction barriers within healthcare teams. The results are related back to theory, and testable hypotheses will be derived. Phase II then comprises the testing of hypotheses through a quantitative survey of patients and their HCPs in six different rare disease patterns. For each of the six diseases, the sample should comprise an average of 30 patients with six HCP per patient-centered healthcare team. Finally, in phase III, qualitative data will be generated via semi-structured telephone interviews with patients to gain a deeper understanding of the communication processes and initiatives that generate innovative solutions.

Discussion: The findings of this proposed study will help to elucidate the necessity of individualized innovative solutions for patients with rare diseases. Therefore, this study will pinpoint the primary interaction and communication processes in multidisciplinary teams, as well as the required interplay between exploratory outcomes and operational performance. Hence, this study will provide healthcare institutions and HCPs with results and information essential for elaborating and implementing individual care solutions through the establishment of appropriate interaction and communication structures and processes within patient-centered healthcare teams.

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Study framework.
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Figure 1: Study framework.

Mentions: Rare diseases are defined as specific disease patterns with a prevalence of less than five in 10,000 [1] patients. This infrequent prevalence causes a serious deficit of expert knowledge that often induces uncertainty, ambiguity, and unpredictability in routine care. However, patients with rare diseases frequently have a strong need for complex and multidisciplinary treatment. Expertise and knowledge are required, but they are often located in dispersed centers of expertise, and are thus disconnected from the local healthcare environment of patients. Standardized healthcare guidelines are lacking due to the great variance of symptoms and treatment processes within each disease pattern. Therefore, multidisciplinary healthcare teams, diverse in education and function, are tasked with creating new, individual, patient-centered solutions to improving patients' long-term healthcare situation. We define this necessary innovative behavior of healthcare providers (HCPs) as the intensity of proactive behavior and improvisation to find adequate individualized solutions for each patient and to implement new processes, products, or procedures to enhance medical outcomes. In addition to the emerging incremental adaptations of current healthcare processes, initiatives and new solutions for medical products and procedures arise that have to be transferred to other HCPs. To cope with the complexity of rare diseases, idea generation and implementation both require the integration all team members' expertise, including that of the patient. As such, communication processes between the involved actors play an essential role. Our study focuses on two different communication processes, knowledge sharing between HCPs and shared decision making between HCPs and patients. Based on two different literature streams, innovation management and health service research, we suggest that both communication processes will foster HCPs' innovative behavior, which in turn influences patient satisfaction positively (see Figure 1). These communication processes are influenced by specific characteristics of rare diseases. In particular, HCPs and patients have to deal with the high functional diversity of the team [2-4] and high environmental uncertainty that affect routine and explorative processes [5,6]. In this study, we develop a theoretical framework and derive hypotheses, as indicated in the study framework above. We also describe the study plan and discuss central contributions of this study.


Shared communication processes within healthcare teams for rare diseases and their influence on healthcare professionals' innovative behavior and patient satisfaction.

Hannemann-Weber H, Kessel M, Budych K, Schultz C - Implement Sci (2011)

Study framework.
© Copyright Policy - open-access
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC3108910&req=5

Figure 1: Study framework.
Mentions: Rare diseases are defined as specific disease patterns with a prevalence of less than five in 10,000 [1] patients. This infrequent prevalence causes a serious deficit of expert knowledge that often induces uncertainty, ambiguity, and unpredictability in routine care. However, patients with rare diseases frequently have a strong need for complex and multidisciplinary treatment. Expertise and knowledge are required, but they are often located in dispersed centers of expertise, and are thus disconnected from the local healthcare environment of patients. Standardized healthcare guidelines are lacking due to the great variance of symptoms and treatment processes within each disease pattern. Therefore, multidisciplinary healthcare teams, diverse in education and function, are tasked with creating new, individual, patient-centered solutions to improving patients' long-term healthcare situation. We define this necessary innovative behavior of healthcare providers (HCPs) as the intensity of proactive behavior and improvisation to find adequate individualized solutions for each patient and to implement new processes, products, or procedures to enhance medical outcomes. In addition to the emerging incremental adaptations of current healthcare processes, initiatives and new solutions for medical products and procedures arise that have to be transferred to other HCPs. To cope with the complexity of rare diseases, idea generation and implementation both require the integration all team members' expertise, including that of the patient. As such, communication processes between the involved actors play an essential role. Our study focuses on two different communication processes, knowledge sharing between HCPs and shared decision making between HCPs and patients. Based on two different literature streams, innovation management and health service research, we suggest that both communication processes will foster HCPs' innovative behavior, which in turn influences patient satisfaction positively (see Figure 1). These communication processes are influenced by specific characteristics of rare diseases. In particular, HCPs and patients have to deal with the high functional diversity of the team [2-4] and high environmental uncertainty that affect routine and explorative processes [5,6]. In this study, we develop a theoretical framework and derive hypotheses, as indicated in the study framework above. We also describe the study plan and discuss central contributions of this study.

Bottom Line: The results are related back to theory, and testable hypotheses will be derived.Therefore, this study will pinpoint the primary interaction and communication processes in multidisciplinary teams, as well as the required interplay between exploratory outcomes and operational performance.Hence, this study will provide healthcare institutions and HCPs with results and information essential for elaborating and implementing individual care solutions through the establishment of appropriate interaction and communication structures and processes within patient-centered healthcare teams.

View Article: PubMed Central - HTML - PubMed

Affiliation: Institute for Technology and Innovation Management, Technische Universit├Ąt Berlin, Strasse des 17, Juni 135, 10623 Berlin, Germany. henrike.hannemann-weber@tu-berlin.de

ABSTRACT

Background: A rare disease is a pattern of symptoms that afflicts less than five in 10,000 patients. However, as about 6,000 different rare disease patterns exist, they still have significant epidemiological relevance. We focus on rare diseases that affect multiple organs and thus demand that multidisciplinary healthcare professionals (HCPs) work together. In this context, standardized healthcare processes and concepts are mainly lacking, and a deficit of knowledge induces uncertainty and ambiguity. As such, individualized solutions for each patient are needed. This necessitates an intensive level of innovative individual behavior and thus, adequate idea generation. The final implementation of new healthcare concepts requires the integration of the expertise of all healthcare team members, including that of the patients. Therefore, knowledge sharing between HCPs and shared decision making between HCPs and patients are important. The objective of this study is to assess the contribution of shared communication and decision-making processes in patient-centered healthcare teams to the generation of innovative concepts and consequently to improvements in patient satisfaction.

Methods: A theoretical framework covering interaction processes and explorative outcomes, and using patient satisfaction as a measure for operational performance, was developed based on healthcare management, innovation, and social science literature. This theoretical framework forms the basis for a three-phase, mixed-method study. Exploratory phase I will first involve collecting qualitative data to detect central interaction barriers within healthcare teams. The results are related back to theory, and testable hypotheses will be derived. Phase II then comprises the testing of hypotheses through a quantitative survey of patients and their HCPs in six different rare disease patterns. For each of the six diseases, the sample should comprise an average of 30 patients with six HCP per patient-centered healthcare team. Finally, in phase III, qualitative data will be generated via semi-structured telephone interviews with patients to gain a deeper understanding of the communication processes and initiatives that generate innovative solutions.

Discussion: The findings of this proposed study will help to elucidate the necessity of individualized innovative solutions for patients with rare diseases. Therefore, this study will pinpoint the primary interaction and communication processes in multidisciplinary teams, as well as the required interplay between exploratory outcomes and operational performance. Hence, this study will provide healthcare institutions and HCPs with results and information essential for elaborating and implementing individual care solutions through the establishment of appropriate interaction and communication structures and processes within patient-centered healthcare teams.

Show MeSH
Related in: MedlinePlus