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Uncontrolled asthma: assessing quality of life and productivity of children and their caregivers using a cross-sectional Internet-based survey.

Dean BB, Calimlim BC, Sacco P, Aguilar D, Maykut R, Tinkelman D - Health Qual Life Outcomes (2010)

Bottom Line: Children's health-related quality of life (HRQOL) and caregivers' quality of life (QOL) were assessed using the Child Health Questionnaire Parent Form 28 (CHQ-PF28) and caregiver's work productivity using a modified Work Productivity and Activity Impairment Questionnaire.They were more likely to miss school (5.5 vs 2.2 days), arrive late or leave early (26.7 vs 7.1%), miss school-related activities (40.6 vs 6.2%), use a rescue inhaler at school (64.2 vs 31.0%), and visit the health office or school nurse (22.5 vs 8.8%).Caregivers of children with uncontrolled asthma reported significantly greater work and activity impairment and lower QOL for emotional, time-related and family activities.

View Article: PubMed Central - HTML - PubMed

Affiliation: Cerner LifeSciences, Beverly Hills, CA, USA. bdean@cerner.com

ABSTRACT

Background: Results of a national survey of asthmatic children that evaluated management goals established in 2004 by the National Asthma Education and Prevention Program (NAEPP) indicated that asthma symptom control fell short on nearly every goal.

Methods: An Internet-based survey was administered to adult caregivers of children aged 6-12 years with moderate to severe asthma. Asthma was categorized as uncontrolled when the caregiver reported pre-specified criteria for daytime symptoms, nighttime awakening, activity limitation, or rescue medication based on the NAEPP guidelines. Children's health-related quality of life (HRQOL) and caregivers' quality of life (QOL) were assessed using the Child Health Questionnaire Parent Form 28 (CHQ-PF28) and caregiver's work productivity using a modified Work Productivity and Activity Impairment Questionnaire. Children with uncontrolled vs. controlled asthma were compared.

Results: 360 caregivers of children with uncontrolled asthma and 113 of children with controlled asthma completed the survey. Children with uncontrolled asthma had significantly lower CHQ-PF28 physical (mean 38.1 vs 49.8, uncontrolled vs controlled, respectively) and psychosocial (48.2 vs 53.8) summary measure scores. They were more likely to miss school (5.5 vs 2.2 days), arrive late or leave early (26.7 vs 7.1%), miss school-related activities (40.6 vs 6.2%), use a rescue inhaler at school (64.2 vs 31.0%), and visit the health office or school nurse (22.5 vs 8.8%). Caregivers of children with uncontrolled asthma reported significantly greater work and activity impairment and lower QOL for emotional, time-related and family activities.

Conclusions: Poorly controlled asthma symptoms impair HRQOL of children, QOL of their caregivers, and productivity of both. Proper treatment and management to improve symptom control may reduce humanistic and economic burdens on asthmatic children and their caregivers.

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Related in: MedlinePlus

Mean WPAI Scores for Employed Caregivers by Asthma Control. *P < 0.0001. †P ≤ 0.005. Note: Analysis only includes caregivers reporting employment (n = 246 uncontrolled, n = 80 controlled)
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Figure 4: Mean WPAI Scores for Employed Caregivers by Asthma Control. *P < 0.0001. †P ≤ 0.005. Note: Analysis only includes caregivers reporting employment (n = 246 uncontrolled, n = 80 controlled)

Mentions: No significant difference was observed in the employment status of caregivers of children with uncontrolled versus controlled asthma: 31.7% vs. 29.2% unemployed, respectively. Restricting the analysis to caregivers of children with controlled and uncontrolled asthma who reported employment (n = 246 [68.3%] and n = 80 [70.8%], respectively), caregivers of children with uncontrolled asthma reported a significantly greater work productivity impairment due to the child's asthma across three of the four WPAI measures (Figure 4). On average, these employed caregivers of children with uncontrolled asthma reported nearly three times more work time absent than that reported by caregivers of children with controlled asthma, but due to the reduced sample size in this analysis, especially within the control group, this difference was not large enough to allow a conclusion of statistical significance. Productivity while working was significantly reduced by 12.7% among caregivers of children with uncontrolled asthma versus 4.9% among caregivers of children with controlled asthma. Caregivers of children with uncontrolled asthma also reported a significant work productivity impairment that was 10.2% greater than the impairment reported by caregivers of children with controlled asthma, representing 4.1 hours of additional productivity loss per 40-hour work-week. Furthermore, regular daily activity impairment due to the child's asthma was significantly greater in caregivers of children with uncontrolled asthma.


Uncontrolled asthma: assessing quality of life and productivity of children and their caregivers using a cross-sectional Internet-based survey.

Dean BB, Calimlim BC, Sacco P, Aguilar D, Maykut R, Tinkelman D - Health Qual Life Outcomes (2010)

Mean WPAI Scores for Employed Caregivers by Asthma Control. *P < 0.0001. †P ≤ 0.005. Note: Analysis only includes caregivers reporting employment (n = 246 uncontrolled, n = 80 controlled)
© Copyright Policy - open-access
Related In: Results  -  Collection

License
Show All Figures
getmorefigures.php?uid=PMC2944345&req=5

Figure 4: Mean WPAI Scores for Employed Caregivers by Asthma Control. *P < 0.0001. †P ≤ 0.005. Note: Analysis only includes caregivers reporting employment (n = 246 uncontrolled, n = 80 controlled)
Mentions: No significant difference was observed in the employment status of caregivers of children with uncontrolled versus controlled asthma: 31.7% vs. 29.2% unemployed, respectively. Restricting the analysis to caregivers of children with controlled and uncontrolled asthma who reported employment (n = 246 [68.3%] and n = 80 [70.8%], respectively), caregivers of children with uncontrolled asthma reported a significantly greater work productivity impairment due to the child's asthma across three of the four WPAI measures (Figure 4). On average, these employed caregivers of children with uncontrolled asthma reported nearly three times more work time absent than that reported by caregivers of children with controlled asthma, but due to the reduced sample size in this analysis, especially within the control group, this difference was not large enough to allow a conclusion of statistical significance. Productivity while working was significantly reduced by 12.7% among caregivers of children with uncontrolled asthma versus 4.9% among caregivers of children with controlled asthma. Caregivers of children with uncontrolled asthma also reported a significant work productivity impairment that was 10.2% greater than the impairment reported by caregivers of children with controlled asthma, representing 4.1 hours of additional productivity loss per 40-hour work-week. Furthermore, regular daily activity impairment due to the child's asthma was significantly greater in caregivers of children with uncontrolled asthma.

Bottom Line: Children's health-related quality of life (HRQOL) and caregivers' quality of life (QOL) were assessed using the Child Health Questionnaire Parent Form 28 (CHQ-PF28) and caregiver's work productivity using a modified Work Productivity and Activity Impairment Questionnaire.They were more likely to miss school (5.5 vs 2.2 days), arrive late or leave early (26.7 vs 7.1%), miss school-related activities (40.6 vs 6.2%), use a rescue inhaler at school (64.2 vs 31.0%), and visit the health office or school nurse (22.5 vs 8.8%).Caregivers of children with uncontrolled asthma reported significantly greater work and activity impairment and lower QOL for emotional, time-related and family activities.

View Article: PubMed Central - HTML - PubMed

Affiliation: Cerner LifeSciences, Beverly Hills, CA, USA. bdean@cerner.com

ABSTRACT

Background: Results of a national survey of asthmatic children that evaluated management goals established in 2004 by the National Asthma Education and Prevention Program (NAEPP) indicated that asthma symptom control fell short on nearly every goal.

Methods: An Internet-based survey was administered to adult caregivers of children aged 6-12 years with moderate to severe asthma. Asthma was categorized as uncontrolled when the caregiver reported pre-specified criteria for daytime symptoms, nighttime awakening, activity limitation, or rescue medication based on the NAEPP guidelines. Children's health-related quality of life (HRQOL) and caregivers' quality of life (QOL) were assessed using the Child Health Questionnaire Parent Form 28 (CHQ-PF28) and caregiver's work productivity using a modified Work Productivity and Activity Impairment Questionnaire. Children with uncontrolled vs. controlled asthma were compared.

Results: 360 caregivers of children with uncontrolled asthma and 113 of children with controlled asthma completed the survey. Children with uncontrolled asthma had significantly lower CHQ-PF28 physical (mean 38.1 vs 49.8, uncontrolled vs controlled, respectively) and psychosocial (48.2 vs 53.8) summary measure scores. They were more likely to miss school (5.5 vs 2.2 days), arrive late or leave early (26.7 vs 7.1%), miss school-related activities (40.6 vs 6.2%), use a rescue inhaler at school (64.2 vs 31.0%), and visit the health office or school nurse (22.5 vs 8.8%). Caregivers of children with uncontrolled asthma reported significantly greater work and activity impairment and lower QOL for emotional, time-related and family activities.

Conclusions: Poorly controlled asthma symptoms impair HRQOL of children, QOL of their caregivers, and productivity of both. Proper treatment and management to improve symptom control may reduce humanistic and economic burdens on asthmatic children and their caregivers.

Show MeSH
Related in: MedlinePlus