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Community-based control of a neglected tropical disease: the mossy foot treatment and prevention association.

Davey G, Burridge E - PLoS Negl Trop Dis (2009)

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Affiliation: School of Public Health, Addis Ababa University, Addis Ababa, Ethiopia. nerurkar@ethionet.et

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Although an estimated one million Ethiopians (of a total population of 77 million) are afflicted with podoconiosis, which creates a huge economic burden in endemic areas, no national policy has yet been developed to control or prevent the condition, and most affected communities remain unaware of treatment options... The Mossy Foot Treatment and Prevention Association (MFTPA) is an Ethiopian non-governmental organization founded in 1998 and registered with the Ethiopian Ministry of Justice in 2000... Information was collected by GD during visits in September 2007 (from the project director and head of social work), March 2008 (from patients and CPAs), and May 2008 (from the project director, representatives of network groups, and the director of the US funding project)... At this level, the health care organization is important, but the community has a prominent role, and therefore the quality and depth of the organization's interactions with the community are vital... Raise awareness and reduce stigma... They are expected to raise awareness of podoconiosis through (for example) local administrative meetings, school assemblies, church services, and coffee ceremonies (the key social meeting place for women in the zone) [project director, head of social work]... Encourage better outcomes through leadership and support... The MFTPA mobilizes their most important resource, podoconiosis patients, by training them as CPAs [project director]... Coordination of services within the MFTPA is good, with quarterly meetings that draw together the clinical, administrative, social work, and community advocacy teams to share good practices and identify important strategy areas [network group representatives, CPAs]... The information system used by the MFTPA is paper-based, reflecting the lack of technological expertise among CPAs, of power supplies at most outreach clinic sites, and of personnel at the project base equipped to utilize electronic databases [project director, training guide]... This is chiefly because of the MFTPA practice of transforming patients into CPAs who almost by definition encourage partnership-forming interactions between patients and families, practice teams, and community partners... The MFTPA is a grassroots organization that was established only ten years ago... Unsurprisingly, it is still relatively ineffective at macro-level within Ethiopia or on the international stage... Evaluation of current strategies against macro-level ICCC components suggests that the most important goals for the near future will be to develop and strengthen partnerships with other organizations that have effective community networks; to identify powerful advocates who can influence senior policy makers; and to encourage sustainable sources of funding from within Ethiopia.

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The ICCC framework.Adapted from [6].
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pntd-0000424-g001: The ICCC framework.Adapted from [6].

Mentions: The Innovative Care for Chronic Conditions (ICCC) framework [6] was developed by a working group of the World Health Organization in response to the burden placed on developing countries' health care systems by non-communicable diseases. The ICCC framework evolved out of the Chronic Care Model, which was developed to enable primary care practices in developed country settings to improve care for patients with chronic disease [7]. The authors describe the ICCC framework as “comprised of fundamental components within the patient (micro-), organization/community (meso-), and policy (macro-) levels. These components are described as ‘building blocks’ that can be used to create or re-design a health care system that can more effectively manage long-term health problems” [8]. The framework is represented figuratively in both articles describing its development and use (Figure 1). Compared to the Chronic Care Model, the ICCC framework emphasizes the importance of the community and community partners, and the necessity of a positive policy environment [8].


Community-based control of a neglected tropical disease: the mossy foot treatment and prevention association.

Davey G, Burridge E - PLoS Negl Trop Dis (2009)

The ICCC framework.Adapted from [6].
© Copyright Policy
Related In: Results  -  Collection

Show All Figures
getmorefigures.php?uid=PMC2682702&req=5

pntd-0000424-g001: The ICCC framework.Adapted from [6].
Mentions: The Innovative Care for Chronic Conditions (ICCC) framework [6] was developed by a working group of the World Health Organization in response to the burden placed on developing countries' health care systems by non-communicable diseases. The ICCC framework evolved out of the Chronic Care Model, which was developed to enable primary care practices in developed country settings to improve care for patients with chronic disease [7]. The authors describe the ICCC framework as “comprised of fundamental components within the patient (micro-), organization/community (meso-), and policy (macro-) levels. These components are described as ‘building blocks’ that can be used to create or re-design a health care system that can more effectively manage long-term health problems” [8]. The framework is represented figuratively in both articles describing its development and use (Figure 1). Compared to the Chronic Care Model, the ICCC framework emphasizes the importance of the community and community partners, and the necessity of a positive policy environment [8].

View Article: PubMed Central - PubMed

Affiliation: School of Public Health, Addis Ababa University, Addis Ababa, Ethiopia. nerurkar@ethionet.et

AUTOMATICALLY GENERATED EXCERPT
Please rate it.

Although an estimated one million Ethiopians (of a total population of 77 million) are afflicted with podoconiosis, which creates a huge economic burden in endemic areas, no national policy has yet been developed to control or prevent the condition, and most affected communities remain unaware of treatment options... The Mossy Foot Treatment and Prevention Association (MFTPA) is an Ethiopian non-governmental organization founded in 1998 and registered with the Ethiopian Ministry of Justice in 2000... Information was collected by GD during visits in September 2007 (from the project director and head of social work), March 2008 (from patients and CPAs), and May 2008 (from the project director, representatives of network groups, and the director of the US funding project)... At this level, the health care organization is important, but the community has a prominent role, and therefore the quality and depth of the organization's interactions with the community are vital... Raise awareness and reduce stigma... They are expected to raise awareness of podoconiosis through (for example) local administrative meetings, school assemblies, church services, and coffee ceremonies (the key social meeting place for women in the zone) [project director, head of social work]... Encourage better outcomes through leadership and support... The MFTPA mobilizes their most important resource, podoconiosis patients, by training them as CPAs [project director]... Coordination of services within the MFTPA is good, with quarterly meetings that draw together the clinical, administrative, social work, and community advocacy teams to share good practices and identify important strategy areas [network group representatives, CPAs]... The information system used by the MFTPA is paper-based, reflecting the lack of technological expertise among CPAs, of power supplies at most outreach clinic sites, and of personnel at the project base equipped to utilize electronic databases [project director, training guide]... This is chiefly because of the MFTPA practice of transforming patients into CPAs who almost by definition encourage partnership-forming interactions between patients and families, practice teams, and community partners... The MFTPA is a grassroots organization that was established only ten years ago... Unsurprisingly, it is still relatively ineffective at macro-level within Ethiopia or on the international stage... Evaluation of current strategies against macro-level ICCC components suggests that the most important goals for the near future will be to develop and strengthen partnerships with other organizations that have effective community networks; to identify powerful advocates who can influence senior policy makers; and to encourage sustainable sources of funding from within Ethiopia.

Show MeSH