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"I'm in a New York State of mind".

Petrelli NJ - Ann. Surg. Oncol. (2008)

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Despite busy practices, they indeed have found the time to build programs, buy into a vision, receive peer review funding, participate in translational cancer research, and publish in quality journals resulting in quality cancer care in Delaware... We see over 3000 new cancer cases per year, and it is a very busy surgical campus with over 40,000 surgical procedures per year... Delaware does not have a physical presence of a medical school; the chartered medical school is Jefferson Medical College... Now, this NCI program was not only put together to increase access to NCI-sponsored clinical trials but with an emphasis on minority recruitment, but also reducing cancer health care disparities, collecting materials for translational cancer research, utilizing the NCI Cancer Biomedical Informatics Grid, ca-BIG, to develop a national database of electronic medical records, and quality-of-life best practice outcomes and survivorship programs starting with colorectal and breast carcinoma... These programs deal with our statewide high-risk family cancer registry, our NCI clinical trials CCOP program, our multidisciplinary disease site centers, and translational cancer research... It involves a collaborative effort between surgeons, family practice physicians, and medical oncologists... One of the reasons it has been effective is that on a weekly basis, the genetic counselors travel to the most southern part of the state to see patients so that they don’t have to travel to the Helen F... They include criteria such as a track record of placing patients on NCI clinical trials each year, attending 66% of the multidisciplinary tumor conferences in the cancer center, and participating in quality-of-care outcome programs... I have been asked numerous times how we were able to get our patient accrual rate to NCI clinical trials above 20%... It has a statewide program to screen all Delawareans over the age of 50 with colonoscopy... Early results show a narrowing in disparity of African Americans for colorectal cancer screening (Fig.  10)... All of these programs are the reason Lieutenant Governor John Carney is receiving the James Ewing Layman’s Award Saturday evening... However, in my mind, these state programs would not be as successful without the Helen F... Dream about what your careers can be, dream about what your family life can be because if you are lucky like me, many of those dreams will become a reality... Electric Light Orchestra said it the best: “When you get so down that you can’t get up, when you want so much but you’re all out of luck, when you’re so downhearted and misunderstood, just hold on tight to your dreams. ” Thank you and just keep rockin’ on!!

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Percent of individuals undergoing gene testing following genetic counseling from 2002–2007. The national average is 70%.
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Fig3: Percent of individuals undergoing gene testing following genetic counseling from 2002–2007. The national average is 70%.

Mentions: With that backdrop, I’d like to briefly discuss four programs, which have been successful because of the high-quality physicians that I showed you just several minutes ago. These programs deal with our statewide high-risk family cancer registry, our NCI clinical trials CCOP program, our multidisciplinary disease site centers, and translational cancer research. Prior to August 2002, there was not one full-time adult genetic counselor in the state of Delaware. Following recruitment, we now have three full-time adult genetic counselors at the Graham Cancer Center. Over the last 5 years, this high-risk family cancer registry named after the governor of the state has collected 900 families with over 30,000 individuals. This is a genetic counseling and gene-testing program that has spanned across the state. It involves a collaborative effort between surgeons, family practice physicians, and medical oncologists. One of the reasons it has been effective is that on a weekly basis, the genetic counselors travel to the most southern part of the state to see patients so that they don’t have to travel to the Helen F. Graham Cancer Center. The high-risk family cancer registry has required a tremendous educational effort. As you can see (Fig. 3) in 2002, approximately 50% of individuals who were offered genetic testing actually underwent gene testing. However, in 2007, 92% of individuals offered genetic testing actually had the gene testing performed. The national average is 70%. Well, what has been the impact of genetic testing on individuals where gene alterations have been discovered? Ninety to 95% have had an impact on their health care management either with prophylactic surgery, increased cancer surveillance, participation in NCI clinical trials, or chemoprevention. Medical oncologists often spend a great deal of effort trying to squeeze in an extra few months of a cancer patient’s life, but no matter how effective our treatments become, they will never be as effective as avoidance of the cancer in the first place. The greatest opportunity to save lives lies in the appropriate counseling and testing of at-risk family members of patients with genetic mutations.Fig. 3


"I'm in a New York State of mind".

Petrelli NJ - Ann. Surg. Oncol. (2008)

Percent of individuals undergoing gene testing following genetic counseling from 2002–2007. The national average is 70%.
© Copyright Policy
Related In: Results  -  Collection

Show All Figures
getmorefigures.php?uid=PMC2491407&req=5

Fig3: Percent of individuals undergoing gene testing following genetic counseling from 2002–2007. The national average is 70%.
Mentions: With that backdrop, I’d like to briefly discuss four programs, which have been successful because of the high-quality physicians that I showed you just several minutes ago. These programs deal with our statewide high-risk family cancer registry, our NCI clinical trials CCOP program, our multidisciplinary disease site centers, and translational cancer research. Prior to August 2002, there was not one full-time adult genetic counselor in the state of Delaware. Following recruitment, we now have three full-time adult genetic counselors at the Graham Cancer Center. Over the last 5 years, this high-risk family cancer registry named after the governor of the state has collected 900 families with over 30,000 individuals. This is a genetic counseling and gene-testing program that has spanned across the state. It involves a collaborative effort between surgeons, family practice physicians, and medical oncologists. One of the reasons it has been effective is that on a weekly basis, the genetic counselors travel to the most southern part of the state to see patients so that they don’t have to travel to the Helen F. Graham Cancer Center. The high-risk family cancer registry has required a tremendous educational effort. As you can see (Fig. 3) in 2002, approximately 50% of individuals who were offered genetic testing actually underwent gene testing. However, in 2007, 92% of individuals offered genetic testing actually had the gene testing performed. The national average is 70%. Well, what has been the impact of genetic testing on individuals where gene alterations have been discovered? Ninety to 95% have had an impact on their health care management either with prophylactic surgery, increased cancer surveillance, participation in NCI clinical trials, or chemoprevention. Medical oncologists often spend a great deal of effort trying to squeeze in an extra few months of a cancer patient’s life, but no matter how effective our treatments become, they will never be as effective as avoidance of the cancer in the first place. The greatest opportunity to save lives lies in the appropriate counseling and testing of at-risk family members of patients with genetic mutations.Fig. 3

View Article: PubMed Central - PubMed

AUTOMATICALLY GENERATED EXCERPT
Please rate it.

Despite busy practices, they indeed have found the time to build programs, buy into a vision, receive peer review funding, participate in translational cancer research, and publish in quality journals resulting in quality cancer care in Delaware... We see over 3000 new cancer cases per year, and it is a very busy surgical campus with over 40,000 surgical procedures per year... Delaware does not have a physical presence of a medical school; the chartered medical school is Jefferson Medical College... Now, this NCI program was not only put together to increase access to NCI-sponsored clinical trials but with an emphasis on minority recruitment, but also reducing cancer health care disparities, collecting materials for translational cancer research, utilizing the NCI Cancer Biomedical Informatics Grid, ca-BIG, to develop a national database of electronic medical records, and quality-of-life best practice outcomes and survivorship programs starting with colorectal and breast carcinoma... These programs deal with our statewide high-risk family cancer registry, our NCI clinical trials CCOP program, our multidisciplinary disease site centers, and translational cancer research... It involves a collaborative effort between surgeons, family practice physicians, and medical oncologists... One of the reasons it has been effective is that on a weekly basis, the genetic counselors travel to the most southern part of the state to see patients so that they don’t have to travel to the Helen F... They include criteria such as a track record of placing patients on NCI clinical trials each year, attending 66% of the multidisciplinary tumor conferences in the cancer center, and participating in quality-of-care outcome programs... I have been asked numerous times how we were able to get our patient accrual rate to NCI clinical trials above 20%... It has a statewide program to screen all Delawareans over the age of 50 with colonoscopy... Early results show a narrowing in disparity of African Americans for colorectal cancer screening (Fig.  10)... All of these programs are the reason Lieutenant Governor John Carney is receiving the James Ewing Layman’s Award Saturday evening... However, in my mind, these state programs would not be as successful without the Helen F... Dream about what your careers can be, dream about what your family life can be because if you are lucky like me, many of those dreams will become a reality... Electric Light Orchestra said it the best: “When you get so down that you can’t get up, when you want so much but you’re all out of luck, when you’re so downhearted and misunderstood, just hold on tight to your dreams. ” Thank you and just keep rockin’ on!!

Show MeSH